Primary Progressive MSI was diagnosed in 1990 with PPMS but had to go on long term disability a year and a half after my diagnosis. I have extreme pain and no energy... By redfeatherwoman1 min readBookmark for laterReactions0reactionsComments8 comments
The Journey of Having This DiseaseI realize I am not the average person suffering from this disease. I am male, 58 when diagnosed, and only been in the hospital once in my life. I live... By mdelp573 min readBookmark for laterReactions0reactionsComments7 comments
Numbness Affecting WalkingI have been affected by numbness that deters my walking. My right knee is numb to the point that I have to use a walker to get around. It is... By dvierarm921 min readBookmark for laterReactions0reactionsComments3 comments
Challenge of Staying Hydrated With an Overactive BladderAvoiding the risk of embarrassing myself is among many of the challenges associated with living with the MonSter. I have encountered another of them. Whether I am at the infusion... By gooch721 min readBookmark for laterReactions0reactionsComments12 comments
The Power of LaughterQuote - Lord Byron: "Always laugh when you can. It is cheap medicine." When did I first become aware of the 'Power of Laughter'? Having been a practicing meditator for... By ruthgeller4 min readBookmark for laterReactions0reactionsComments6 comments
Where to Go From Here...Well I have a long story as do many of you. I’ve been reading stories for a while now but I feel it’s time to tell mine just to get... By stroirk2 min readBookmark for laterReactions0reactionsComments12 comments
Really?After falling down and laying in the hallway for 3 hours too dizzy to move, I made it to doctor's and all I got was a laugh and a, "Come... By meemaw1 min readBookmark for laterReactions0reactionsComments3 comments
Relapsing MSHi, I was recently told that I have MS. At first, I said, not me. So I went for a second opinion, and they sent for all kinds of testing... By mmurphy0371 min readBookmark for laterReactions0reactionsComments1 comments
Lost?Has anybody ever lost your hearing in both ears, and your voice changed, and your vision got bad overnight? I had this happen to me a year and a half... By gemsmamaw1 min readBookmark for laterReactions0reactionsComments3 comments
Was Good So FarI was detected with multiple sclerosis at the age of 46. It was a routine eye checkup and the ophthalmologist asked for an MRI of the brain and spine. After... By goneon1 min readBookmark for laterReactions0reactionsComments1 comments
The Silver Lining?Having lived with Primary Progressive MS for 20+ years, I’ve experienced most of the symptoms that make this disease often horrifying. Somehow, I’ve managed to avoid any nerve or other... By iamnotmybody1 min readBookmark for laterReactions0reactionsComments1 comments
MS StrongI wrote this poem about my MS life for a poetry slam. It turns out the poetry slam had too few what I call poems. Although I did not win... By ss46sh1 min readBookmark for laterReactions0reactionsComments3 comments
They Told Me It Was Rare (I Can Barely Stand the Pain)First, sorry about the spelling, I'll do my best. I am trying to outrun my harsher symptoms. My third opinion, in 2007, was from an MS specialist in a "learning"... By echoes2 min readBookmark for laterReactions0reactionsComments11 comments
A Rocky but Amazing JourneyI was diagnosed with MS in the summer of 2009 at the age of 32. I began my journey with a general neurologist. I was absolutely miserable for about the... By metalman12261 min readBookmark for laterReactions0reactionsComments1 comments
Maybe, Maybe Not? A Waiting Game.Hi everyone. I am a proud "47" year old woman. Sometime days I feel 21, other days 80. 2008: Years after having my son, I developed cystic acne. Nothing seemed... By cleo19203 min readBookmark for laterReactions0reactionsComments23 comments
I Wanted to Write a "Good" Letter!Hello, I wanted to write a "Good" letter! A letter that told the story of the "Struggle" that comes from having MS - ["Wart's and All"]! A story about "Hope"... By peter-p6 min readBookmark for laterReactions0reactionsComments1 comments
Struggling for AnswersI have been unable to work since last August. My first symptoms was tingling and numbness in my leg. Then it progressed to include my arms and legs. Sometimes I... By chickenfarmer1 min readBookmark for laterReactions0reactionsComments1 comments
Needing to VentI am posting this today because I simply need to vent. I am not looking for advice or suggestions because trust me, I have probably thought of them all. Living... By Janus Galante2 min readBookmark for laterReactions0reactionsComments5 comments
Prescription costs sky high! 🙁I had worked very hard since graduating college, and had climbed high up the corporate ladder. I was 36, newly married and was and was looking forward to starting a... By suemango1 min readBookmark for laterReactions0reactionsComments1 comments
SerendipityIt is strange, but MS has helped my marriage, of 30 years. I used to be totally active, I would go three places a day, and the house was just... By tbirdfly2 min readBookmark for laterReactions0reactionsComments3 comments