Bobbing, swaying, and vibrations inside my body - can anyone shed light on this?
I have been experiencing a feeling as if I am bobbing, swaying, and vibrations inside my body. I have had this for four years now. I have been to physical therapy and to a psychologist and has not helped. Sometimes family can see it when I stand up my legs kind of sway but other times I feel like I am being pulled from all different sides. I really am at my wit's ends with this movement disorder. Can anyone shed some light on this? Thank you.
Hi Mimi10,
hopefully you'll get some feedback from some community members on this, but I thought maybe this article might be worth looking at meanwhile? https://multiplesclerosis.net/living-with-ms/body-all-a-buzz/
I can tell you that the vibrating and swaying have been mentioned here by other members, and I have experienced it myself. Please know that you're not alone.
You mentioned having been to a physical therapist and psychologist and that you've been experiencing it for 4 years now so I'm assuming that you've talked to your doctor about this? (Probably many times?!)
This must be so frustrating! Have you been specifically to a neurologist about this?
I hope you can get some answers soon! JanusHi Janus, yes my neurologist has been no help to me at all. So hard to explain, My body is constantly moving inside, so very tiring just doing laundry or the dishes, cooking, it takes so much effort just to stay upright , think of it as if you are trying to constantly balance on a balance beam but you constantly feel like you are going to fall off. I don't know if I will ever get rid of it, so tired of getting no help. So sorry to sound so down.
Thank you so much
Mimi10
Thank you so much for the article. Yes I have been to many dr.s for this. They are sending me to a movement disorder neurologist I hope to get some answers to why this is happening. It has made me feel all alone. My family doesn't even understand it. I feels like I am constantly on a boat.
Hello people I have read many reviews in here and am so happy to know that I am not alone I am going to be 50 this year and have had ms for 14yr and many of my family members do not understand what I am going through I have an amazing husband that takes good care of my but my children say oh you are alright you can walk a long distance but I need to remind them a myself that my legs give out so I need to take my time when I go to bed and lay down I think sometimes my dogs are not going night night so I tell them night night time and realize that it’s not them it’s me my whole body is vibrating and twitching and give them love’s makes me feel bad I have come to the point that this is my life and can’t do anything and have come to terms with it and all that comes along with ms I was told by my neurological that he is concerned that I am having problems with my eyes and I may go blind I think that is the only thing that really bothers me because I won’t be able to see my children and grandkids I know that I will hear and be able to hear and touch but it’s just not the same thing and this breaks my dreams
Thanks for sharing a part of your MS story here, Samantha. I know many of our members can relate to what you shared, from the nighttime vibrations to the family members that just don't understand what you deal with on a daily basis. I hope that your neurologist is able to refer you to a vision specialist that may be able to offer some treatment options to preserve your eye sight. Perhaps you have already looked into treatment options. I do hope that you are fully able to enjoy those future grandbabies, whether or not you have your vision. Thank you again for sharing! Best, Erin, MultipleSclerosis.net Team member.
Hi Janus, yes my neurologist has been no help to me at all. So hard to explain, My body is constantly moving inside, so very tiring just doing laundry or the dishes, cooking, it takes so much effort just to stay upright , think of it as if you are trying to constantly balance on a balance beam but you constantly feel like you are going to fall off. I don't know if I will ever get rid of it, so tired of getting no help. So sorry to sound so down.
Thank you so much
Mimi10
