kayleighhill
What have been some of the financial struggles you have faced due to your multiple sclerosis?
Have you experienced difficulty with the costs of medicines, testing, copays, travel, insurance, and more?
What have your experiences been like?
We have resources to manage those healthcare expenses here: https://multiplesclerosis.net/resources-cost
Hamaara Member
Not all applies, as I am in Canada. But even with our health care system there are more and more out of pocket expenses as well. Dmt isn't covered well and very complicated. I person I know is now on a wheelchair, despite a drug that was working. As the insurance refused to pay and they couldn't afford it. How sad if it's preventable. I am now of work for 6 month, possibly longer if there is no recovery. So in the process of applying for disability. And if they accept the claim, still decrease in income. So time will tell. But try to keep positive and keep looking for more assistance! Great info👍
Lori Foster Member
Hi @tuppense. In the United States, an MS diagnosis in itself does not prohibit you from driving. Many people decide to give up driving because their symptoms worsen and make it too dangerous. Others have their licenses revoked by doctors who determine it is no longer safe for them to drive. Most everyone I know with MS still drives. Have you double-checked with the authorities where you live? Best wishes! - Lori (Team Member)
Hamaara Member
Hamaara Member
Well for the most part we can't complain, at least not with a work related benefits plan. But there are many hidden road blocks and crazy long wait times. You typically wait month to get into any specialist or get an MRI and so on. But the one thing here, you are usually not financially bancrupt after. However, waiting for month even with confirmed cancer or in this case waiting on getting onto dmt is a test in patients, to say the least 😊 Trusting in God it all gets worked out in a timely fashion. And seeing Dr Boster from Ohio next week as telehealth visit will be a big help!
Lori Foster Member
Hi
Hamaara Member
Although my anxiety was through the roof, since the last neurologist appointment was very bad. I fully appreciate Dr Boster, he is great to work with and really knows his work! So another MRI for the spinal cord needed, OCT and a spinal tap and he is in support of a referal to the local MS clinic. This means a while before I get to worry about a dmt.
Lori Foster Member
Hi @Hamaara! I hope the wait is worth it and that you get the best possible treatment because of it. Sending you the best of all wishes! - Lori (Team Member)
Hamaara Member
MRI was done, but not all, the referral was incorrect. Waiting on the rest. But my short term disability was approved.
Lori Foster Member
Hi
TiltInMyBrain Member