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Fatigue and MS

How would you describe your MS fatigue?

How has it impacted your life?

  1. Fatigue has changed everything in my life. Many days I feel like I accomplish absolutely nothing because my body just can't move.

    1. the nurse practitioner prescribed it, and then she asked me do you have anxiety and I said yeah and she goes then you can't have it. And then they wrote that I was a drug seeker because one of the nurses wrote that I should try provigil instead. Well I went to my psychiatrist and I got provigil and that works, so now it's in my permanent record that they think I'm drug seeking at the neurologist! I got medically gasoline. glad it works for you.

    2. you are not alone. 🫂

  2. I wish there was a different word for MS fatigue. It is a sickness well beyond tiredness or even malaise or flu like feeling. For me it is increasing as time goes on. I have had MS 15 yrs. and could fight this “fatigue”with regular exercise, diet, sleep, meds etc. But as I weaken it now consumes me.

    1. have you tried gentle yoga. For me personally I couldn’t get through my day without it. I do Ali McGraw’s yoga on CD (from the 90’s) but absolutely has a great teacher & doesn’t ever feel like heavy instruction. I also hear chair yoga has worked for some of my friends with other challenges. Sending u the best. Completely understand.

    2. accurate…but somehow still not enough.

  3. Extremely

    1. Your Dad was right I learned the same lesson by taking care of myom when I could hardly take care of of myself. Remember his words they are powerful and it will make you stronger.

  4. I feel tired all the time. I only work 3 days a week now and my days off I do nothing cause I'm sore and tired from work. I do a little housework, might take a nap in the afternoon and cook tea and that's me day done. I don't sleep well which doesn't help....

    1. yes had to learn sleep hygiene which was & still is not easy for me however when I turn everything of. Phone, tv 30 minutes before bed it is a game changer

    2. I just got diagnosed a year ago and it's all so new that sometimes I just feel really just blah like I don't want to do anything, just kind of tired all the time now, and then sometimes insomnia. Interesting. Thanks for sharing!

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