How to deal with a rapidly progressing disease.

I was diagnosed with RRMS in 2000. Over the years I have always been very positive about my MS, a cheerleader, even as they changed my pigeon hole to SPMS and now it is considered PPMS. It has been a relatively slow progression up until about 1 -2 year ago. Up until then the changes to me, while hard to believe, were manageable. In fact, I think your body and mind learn to adapt to your new situation and almost block how things were. Previously, years went by without any noticable change - but now I can look back a couple of months and tell you what has changed and worsened. Over the years, the majority of my problems have been waist down, with my legs being the worst since day one and getting consistently worse. Like many others, this is not the only problem we deal with - bladder issues, temperature fluctuations, balance or lack of ( which I find the most dangerous, because falling is real, I have fallen a number of times recently ), numbness and pain to name only a few more. Today, I find much more upper body issues, loss of dexterity in my hands, increased spasticity in legs and hands, cognitive problems. Currently, I gave up driving this past April 2023, but I can still get about my house with a walker and get out with a mobility scooter with a walker strapped on the back for outings, but have realized that to use the scooter, I have to be able to get myself to the garage which seems that will be short lived. I am doing my best to adapt and deal with the basic things - dressing oneself, bathing, cooking, cleaning etc. , all which seem to deplete my strength rapidly. While my spouse has been helpful, I understand that she will not be the caregiver for me. So having said all above, I guess this is now the reason for this post : I have to take careof myself - What's next and where can one go to learn how to deal with the next phase ? which I feel is coming faster that I want. I am now picturing myself in a wheelchair sooner that later and what does that look like. Changes that will need to be done around the house : modifying bathroom and shower, beds and sleeping and many other thing I don't yet understand. How to get around and the vehicle that I will need to accommodate? Will I need home care and to what level ? I am finding that the Dr's that have got me to this point, seem to be leaving me behind as there is less they can do to " Slow the Progression " Further: I find my mental state is not as positive as it has been and is harder to achieve the positive, Falling is bad because you can’t get up ! , UTI’s and recently Covid take all strength and mobility away both sending me to the hospital to recover. As I said previously , my spouse has been helpful but god forbidding, what if something happened to her ? , would I then be destined to long term care ? Kevin Wood Chilliwack, BC, Canada.