Eligible age to consider stopping MS treatment?
Has anyone's doctor told them that they were of an eligible age to stop taking MS medication?
What was the conversation with your doctor like?
What were your thoughts on it all?
I just turned 60 and neurologist said I would get my DMT for 3 more years
Well the Neurologist stated I could safely stay on DMT infusion, I had read a article stating they usually stop DMT in 60' because they dont think we would have anymore activity in brain etc..i have friend stopped DMT and had activity...I am just not sure...
, I think that's totally fine! You have to listen to your body and your intuition on something this important! I know some folks feel pretty relieved to go off treatments, while others do not want to stop treatment just because of a number on their chart, if that makes sense. You have to do what works for you!
Thank you for expanding on your situation. I think as Baby Boomers and Gen-Xers age and start facing these decisions, important conversations like this will come up more and more often.
Best, Erin, MultipleSclerosis.net Team Member.
that's certainly an understandable concern. It's helpful to remember that we each have our own experiences with MS. If you haven't done so already, I would encourage you to talk it through with your doctor so you can understand the best approach you.
- Alene, moderator
My neurologist mentioned new research about the effectiveness of DMTs after the age of 60. As I'm 59 and my MS is fairly benign, I'm thinking about it. And she's going to do more reading/research into stopping treatments. I'm on Tecfidera and the side effects are minimal now. Compared to other health issues I'm dealing with, popping a capsule twice a day isn't hard though I know it's expensive. Thank goodness for free, universal healthcare in my country.
, I like that your neurologist is on top of things and willing to keep doing research as you face this decision. I am glad your MS is mild and your side effects to Tecfidera are minimal, but it's still an important decision.
Thanks for joining this conversation!
Best, Erin, MultipleSclerosis.net Team Memberthat's great to hear that your doctor brings you the latest research. My neurologist is helpful in that way too. I appreciate knowing that she reads the latest studies so I feel like I'm always getting the most current care. It's wonderful to also hear that you're doing so well with Tecfidera in the meantime. Having stability and minimal side effects is the goal for us all! Thanks again for sharing your experience and story here.
We'd love to hear how your conversations continue to unfold about your decision, if you feel comfortable. As always, no pressure!
- Alene, moderator
I'm only 50 and expect to take the medication until my last day. I can't imagine why you should no longer take the medications that are important in themselves. I think age is a bad argument.
Greetings, Denis.
