Learning to Be Me... EverydayI have been an artist and musician my entire life and have had MS for 13 years now. Things have been increasingly hard to do in both fields of art... By chriscoxrox1 min readBookmark for laterReactions0reactionsComments4 comments
Stop Yelling at Me!So, mentally I could not sit home anymore and wanted to get back to a job if at all possible. Long story short, someone I knew needed help in a... By megan231 min readBookmark for laterReactions0reactionsComments3 comments
Miss Susan B. CooperHave had MS for 35 years. Taken Betaseron, Avonex and lastly a medical infusion for 8 hours. Have had bladder issues the entire time. Expecting a new bladder medicine to... By scooper37221 min readBookmark for laterReactions0reactionsComments1 comments
My StoryI really don’t know how to begin a not so interesting story and keep it interesting but I’m going to give it a shot. This writing all starts with an... By DOnJewelsNJ5 min readBookmark for laterReactions0reactionsComments2 comments
The Invisible MS Symptom of GrievingSomething IMO most people fail to realize is the grieving process one goes through caused by the symptoms of MS, the lack of understanding from family and friends, etc. Sometimes... By janeel1 min readBookmark for laterReactions0reactionsComments4 comments
The Power of Words“The Power of Words” So important that it even comes with titles and educationally earned Degrees! Like Moderators, Therapists, Councilors, etc.... There is training to gain proper communication skills: Active... By janeel6 min readBookmark for laterReactions0reactionsComments7 comments
One Advocate's Journey - A Cautionary Tale...Hello friends! So throughout life, have never been one to back down, especially where truth and the pursuit of truth are concerned. Please do not let this story dissuade you... By mwrightorlando13 min readBookmark for laterReactions0reactionsComments3 comments
When Your Care Partner is IllI am writing this 10 days after my husband had bowel obstruction surgery, 12 days after he was admitted to the hospital and 5 days after I brought him home... By nancyw4211 min readBookmark for laterReactions0reactionsComments1 comments
Why Should This Upset Me?!It happened (again) a few days ago when a casual acquaintance called me and asked me if I was alright "the other day?" It just so happened I was having... By Janus Galante2 min readBookmark for laterReactions0reactionsComments3 comments
Specialized Caregiver Tools: Fur-Lined HandcuffsI was looking for something in my closet earlier today when I came across a small plastic bag containing a set of fur-lined handcuffs. I had completely forgotten about them... By teddys2 min readBookmark for laterReactions0reactionsComments1 comments
Will They Find A Cure?Ask my 12-year-old self and I’d laugh at their face. Back then they only had steroids and a few other things (that weren’t disease-modifying medications MODs). This was 1997-1998. That’s... By kandis1 min readBookmark for laterReactions0reactionsComments5 comments
Theme SongsWe have a musical house. Well, neither my husband nor I can remember how to play the piano or guitar even after years of lessons, nor can either of us... By messeeone2 min readBookmark for laterReactions0reactionsComments8 comments
Happy 20th Anniversary MS?I was diagnosed when I was 11 I think. Practically born with this disease, I gave myself license to say I’ve had it since I was 12. When I was... By kandis1 min readBookmark for laterReactions0reactionsComments2 comments
Living Proof“Well… I don’t think you’ll be ambulatory in 10 years.” That was my first neurologist’s parting words to me as my wife and I left his office. For the past... By jkeith2 min readBookmark for laterReactions0reactionsComments1 comments
St. Louis Area ResourcesI have started a website about my insights (Blog) and a resource of groups in the area and the who, where, when, and what for anyone to see at one... By mdelp572 min readBookmark for laterReactions0reactionsComments1 comments
PSA: When My Shirt is on Inside Out...I was diagnosed with Multiple Sclerosis (MS) December 13, 2013 – that was my diagnosis date, not the date of onset. To borrow from President FDR, that was a date... By petunia2 min readBookmark for laterReactions0reactionsComments6 comments
My Heroic Dog "Charlie"I just had to laugh about his actions. I sleep under oxygen and had changed out all the tubing and put in fresh. I just dropped the used ones in... By chong611 min readBookmark for laterReactions0reactionsComments6 comments
Don't Let MS Define or Control Your LifePraise the Lord! I am still here! Heading into my 32nd year after diagnosis of RRMS I realize how blessed I am. In 1987 MRIs were brand new, my brain... By ladyjad2 min readBookmark for laterReactions0reactionsComments2 comments
MS Doesn't Happen to "Old" PeopleAfter over two weeks in hospital when I was in my sixties... having strange symptoms... Different doctors coming up with possibilities, scratching their heads saying, "No way, it can't be... By pippa1 min readBookmark for laterReactions0reactionsComments5 comments
My Autoimmune Story - or Life's a Roller CoasterI know I'm not the first or only person to have more than 1 autoimmune disorder, but I'm currently up to not 1, not 2, not 3, but 4! Yep... By soup1 min readBookmark for laterReactions0reactionsComments2 comments
