Advice on Finding a Good NeurologistUpon being diagnosed with Multiple Sclerosis (MS) one of the last things on your mind is probably, “I need to do some research and find a really good doctor to...Reactions0reactionsComments14 comments
It's Okay to Ask for HelpIt’s okay to ask for help. I am an extremely stubborn and self-sufficient person. I love knowing I can do things on my own, but one thing I’ve had to...Reactions0reactionsComments11 comments
How Does MS Affect Your Sleep?Fatigue is one of the most common and frustrating symptoms that comes along with multiple sclerosis. In MS there is both fatigue and what is known as lassitude. Lassitude is...Reactions0reactionsComments28 comments
Look Beyond The Surface, A Plea To Those With And Without A DiseaseRecently, I came across yet another story from a friend with MS about how they were discriminated against because of their handicapped parking placard. This is such a disheartening thing to...Reactions0reactionsComments24 comments
What is Normal, Anyway?As I sat and drank my coffee this morning while my toddler napped, I thought to myself: I can’t even remember what life was like before MS. I wonder what...Reactions0reactionsComments2 comments
The Torture That Is MS-Related Chronic PainI’ve been writing about my journey with multiple sclerosis for a while now. I’ve discussed a wide range of issues that I’ve dealt with over my many years with the...Reactions0reactionsComments165 comments
I Miss Me TooSo this is probably really random, but it hit me recently, that in conversations I seem to say, “I used to….”, frequently. For instance, I was playing basketball with my...Reactions0reactionsComments35 comments
Stable Disease Does Not Mean Symptom FreeRecently I was talking to a nurse; not my nurse, but someone who came to the house to help my mother with some new medication. During our conversation, I mentioned...Reactions0reactionsComments10 comments
The Question "How are you feeling?" And The Mixed Feelings It Can CauseIf there is one question that those with a chronic illness like multiple sclerosis hear a lot, it’s “How are you feeling?” or some variation of it. It may seem...Reactions0reactionsComments61 comments
Nearly 17 Years With MS: Some Things I Wish I Knew When I Was DiagnosedWow, times sure flies as you get older, doesn’t it? As I write this, I’ve been diagnosed with Multiple Sclerosis for 16 years (actually, closer to 17, my MSiversary is...Reactions0reactionsComments86 comments
Staying Ahead of the Bully Called MSOne of the biggest goals people living with multiple sclerosis (MS) have is avoiding disease progression. The fewer relapses the better, right? We want to keep moving! We don’t want MS...Reactions0reactionsComments4 comments
Attention Issues and MS - Yes, They're Real!When it comes to having a primary neurological disease like MS, I feel like overall, I am still pretty intelligent. I’ve always loved problem-solving as well as learning. But over...Reactions0reactionsComments5 comments
Spasms and Stiffness: Life with MS SpasticityAs I sit down to write this, my train of thought is constantly being interrupted. Not because of brain fog, like you might suspect, but because the muscles in my right...Reactions0reactionsComments179 comments
Body All A-BuzzYesterday, my husband and I went for a nice long bike ride. The weather was particularly warm for Autumn and the sky was gorgeously clear. I was compelled to take...Reactions0reactionsComments22 comments
Some Things I Wish People Knew About MS-Related FatigueOf the many symptoms that plague those of us with multiple sclerosis, one of the most common is fatigue. It’s such a common symptom that the National Multiple Sclerosis Society...Reactions0reactionsComments203 comments
Overcoming Barriers to Clinical TrialsThere’s lots of talk in the research world about clinical trials, how hard it is to recruit patients, and the accompanying inability to meet the research goals. How often have...Reactions0reactionsComments1 comments
Basic Occupational Therapy: Smaller TasksWith time, your multiple sclerosis (MS) may start to cause tasks that were once done with ease to become quite difficult. MS may also affect just how much you can...Reactions0reactionsComments15 comments
Cold Hands-Hot Body: It’s All Bothersome To Some DegreeGrowing up in central Oklahoma, I learned to love the feel of the sun on my skin. As soon as spring rolled in, I would come home from high school...Reactions0reactionsComments3 comments
Advice for Family and Friends of Someone with MSFor people with multiple sclerosis (MS), a strong support team is vital in life. Some people may need a primary care physician, a neurologist, an ophthalmologist, a physical therapist, an...Reactions0reactionsComments7 comments
The Before and After of a Tysabri InfusionDuring my life with multiple sclerosis, I have tried numerous treatments. From Avonex, to Copaxone, to Avonex and Copaxone at the same time, and even just diet and exercise. However, no...Reactions0reactionsComments56 comments