Tips for Managing Caregiver BurnoutYou think we get tired of living with a chronic disease? Then just imagine for a moment what the people closest to us must feel – they have to get...Reactions0reactionsComments2 comments
Let's Talk About Aging and Multiple SclerosisI was thrilled when I was invited to be a patient expert for the website LiveWise MS. Along with other experts (mainly nurse practitioners), LiveWise MS offers pertinent content for...Reactions0reactionsComments4 comments
Sometimes I Wish It Wasn't MeI’m just going to be honest for a second. As much as I want to say that MS doesn’t have me, I have to admit that my MS has a...Reactions0reactionsComments18 comments
9 Tips for MRI AnxietyThere are more questions and unknowns that come with multiple sclerosis than certainties and regularities. I think that’s one of the many reasons getting diagnosed with MS is so frightening...Reactions0reactionsComments2 comments
The Ultimate Travel Checklist for MSersI love to travel. It makes no matter if the trip is regional, national, or international. It makes no matter if the trip is via bicycle, car, train, boat, or...Reactions0reactionsComments5 comments
I've Got a Short FuseIt’s hard for me to fully remember on how I “used to be” pre-diagnosis, but I don’t believe that I had as ‘short of a fuse’, so to say. This...Reactions0reactionsComments11 comments
The Misadventures of My Bowel And BladderI am hesitant to write about this subject, but here goes anyway. Fingers crossed, I hope you can relate. At this point in my life, I’m 42 years old. Still...Reactions0reactionsComments11 comments
The Emotional Roller Coaster of an MS Diagnosis: Part 1I was formally diagnosed with MS on May 15, 2013 (almost 5 years ago!), in the middle of what I now recognize as a relapse, and it was not the...Reactions0reactionsComments1 comments
Living with MS is More Complicated Than You Think - Results from MS In America 2017Multiple sclerosis is an incredibly complex condition, not only when it comes to the science behind it, but also what it means for living with it on a daily basis...Reactions0reactionsComments83 comments
My Cognitive Changes Because of Multiple SclerosisThe list of symptoms that someone fighting multiple sclerosis might encounter is extremely long. Over the years, I’ve written about many of the ones that impact my life. Until today...Reactions0reactionsComments195 comments
How to Sleep with Tinnitus, a Rare Symptom of MSThis week, the sound of music returned. Not music anybody else can hear, and hardly musical, if you ask me. It's my tinnitus, and it comes and goes as it...Reactions0reactionsComments2 comments
Motherhood Is My One ConstantOn Friday, my Oldest son will celebrate his 13th birthday, which also means it's been that many years since I crossed into the wildly uncharted territory of motherhood (my personal...Reactions0reactionsComments4 comments
MS Turns Friends Into Strangers and Strangers Into FriendsThe multiple sclerosis community has some great sayings that we share amongst ourselves and others. Phrases such as “You don’t get MS until you get MS,” “I have MS but MS...Reactions0reactionsComments10 comments
The Hot and the Cold of It: How Temperature Changes Can Affect My MS BodyI’m not going to tell you what you should do about this. It’s not that I’m holding out on you, it’s just that I know you’ve read the official facts...Reactions0reactionsComments24 comments
What Are the Differences Between CIS, RRMS, SPMS, and PPMS?In 2013, the International Advisory Committee on Clinical Trials of MS defined four types of multiple sclerosis (MS): The classification and accurate descriptions are important for treatment decisions, as well...Reactions0reactionsComments3 comments
Migraine and MSPeople living with multiple sclerosis (MS) can face many symptoms like pain, fatigue, and mood changes. Some people with MS also have migraine attacks. Migraine and MS have some similarities...Reactions0reactionsComments2 comments
The Importance Of Routine And Familiar Places To My MSManaging my Multiple Sclerosis and its many varied symptoms is a constant battle and has been a long struggle for me. Through a lot of trial and error, I have...Reactions0reactionsComments23 comments
Unfair! MS Pain Causes Fatigue, Fatigue Amplifies MS PainWhat's a person with MS to do? For those who've had an MS diagnosis for a while, there's relief in knowing that specialists now mostly agree that MS does, in...Reactions0reactionsComments8 comments
Is It an MS Relapse or Pseudoexacerbation?Multiple sclerosis (MS) damages the nerves found in the brain, spinal cord, and optic nerve. This disrupts signals between the brain and the body, leading to a variety of symptoms...Reactions0reactionsComments7 comments
What To Do When You Overdo ItOne long, exhausting day... That’s all it takes to throw my life and health off track. When this happens it’s not even an exhaustion I can explain. And it doesn’t...Reactions0reactionsComments15 comments