Disease-Modifying Therapy: To Continue or Not to Continue Is the QuestionWow, I can see that look of, “Are you crazy?” And I agree with our younger generation asking this question, although, this is a valid consideration for us older folks...Reactions0reactionsComments8 comments
A Service Call to Dog Lovers With MSThere was a reason why I named him Bean. In the award-winning book Ender’s Game, there was a character named Bean. This character was genetically modified to be incredibly smart...Reactions0reactionsComments54 comments
Another Day, Another Diagnosis: Cervical Dystonia and MSI have dealt with essential tremors for as long as I can remember. They began in my hands, but my hand tremors lessened in college, and I began noticing an...Reactions0reactionsComments17 comments
An Advocate Without a RibbonThis past March was another multiple sclerosis awareness month of lost opportunities. Each year I have lofty goals to participate in every activity available. I want to support my chronic...Reactions0reactionsComments9 comments
MSAA Webinar: Living with MS as an LGBTQIA+ PersonOn September 29th, the Multiple Sclerosis Association of America (MSAA) is hosting a digital educational program dedicated to raising awareness and understanding about living with MS as an LGBTQIA+ person...Reactions0reactionsComments0 comments
The Experience and the Explanation: MS NumbnessNumbness has been a symptom I have dealt with since the very beginning of my MS journey. It was one of the first symptoms that sent me to the doctor...Reactions0reactionsComments58 comments
My New Focus on Well-Being and Managing Daily MovementSo often, living with chronic conditions like MS, we learn how to manage medications, manage doctor appointments, manage lifestyle choices, manage time, manage flare-ups, and more. All of this management...Reactions0reactionsComments17 comments
Unique Considerations About Sex for Men With MSBeing a man who has been diagnosed with multiple sclerosis can lead to questions about changes in sexual activity. Maybe you are newly diagnosed or don’t notice much of a...Reactions0reactionsComments5 comments
How I Talk Myself Through My MS Journey Using Transactional AnalysisMany people with chronic illness benefit from practicing some form of psychotherapy. It can easily be added to drug and physical therapies, meditation, prayer, and other kinds of wellness practices...Reactions0reactionsComments9 comments
The Latest on MS Clinical TrialsClinical trials are the process we use to test new treatments. Most of the drugs and treatments we use exist because of clinical trials. These trials are an important step...Reactions0reactionsComments7 comments
The Inhumane Disability System: Part 2Recently, I wrote about some experiences that I’ve (as well as many people I have spoken with) had with the disability process. In particular, I discussed how the disability system...Reactions0reactionsComments47 comments
Things I'd Have Done DifferentlyLiving with MS longer than I’ve lived without it has definitely given me some insight. It’s hard not to look back and wonder what would have happened if I’d done...Reactions0reactionsComments22 comments
Sex for Women With MSMost people are aware of decreasing libido after menopause in women. But in reality, many women notice the loss of libido while raising children and working full time, and yet...Reactions0reactionsComments33 comments
Be Mindful of "Harmless" Witticisms - Particularly Relative to HealthOscars 2022..."Jada, I love you. GI Jane 2, can’t wait to see you," Chris Rock says in jest to Jada Pinkett Smith. Chris's "comedic" line referenced her shaved hair to...Reactions0reactionsComments4 comments
"You Look Healthy" Yet MS Impacts Our LivesOh my, we have all heard the “You have MS? But you look healthy!” And oh how that so bugs so many of us. I know we have all heard...Reactions0reactionsComments7 comments
The Change I Did Not ExpectI did not see it coming in any way shape or form. I was truly blindsided by not just the event, but the fact that I probably should have anticipated...Reactions0reactionsComments2 comments
The Inhumane Disability System: Part 1When you stop and think about all of the things that can make multiple sclerosis worse, stress is likely near the top of the list. As I write this, I...Reactions0reactionsComments20 comments
MSAA Releases Educational Video Series: COVID-19 Vaccines and MSThe Multiple Sclerosis Association of America (MSAA) has released an educational video series about COVID-19 vaccines. Titled COVID-19 Vaccines and MS, topics include the importance of getting vaccinated and receiving...Reactions0reactionsComments0 comments
Time to Regroup and DeclutterWhen I feel like I cannot handle the mess, I regroup. My home, my things, my thoughts, myself. I cannot focus on anything until I clean up everything around me...Reactions0reactionsComments14 comments
Steroids for MS Relapse: Benefits and Side EffectsNobody with relapsing-remitting MS wants to wake up facing a new flare-up (aka relapse, attack, or exacerbation). The pain, dysfunction, and disability that it can bring are no joke. In...Reactions0reactionsComments7 comments