The Inhumane Disability System: Part 2Recently, I wrote about some experiences that I’ve (as well as many people I have spoken with) had with the disability process. In particular, I discussed how the disability system...Reactions0reactionsComments47 comments
Things I'd Have Done DifferentlyLiving with MS longer than I’ve lived without it has definitely given me some insight. It’s hard not to look back and wonder what would have happened if I’d done...Reactions0reactionsComments22 comments
Sex for Women With MSMost people are aware of decreasing libido after menopause in women. But in reality, many women notice the loss of libido while raising children and working full time, and yet...Reactions0reactionsComments33 comments
Be Mindful of "Harmless" Witticisms - Particularly Relative to HealthOscars 2022..."Jada, I love you. GI Jane 2, can’t wait to see you," Chris Rock says in jest to Jada Pinkett Smith. Chris's "comedic" line referenced her shaved hair to...Reactions0reactionsComments4 comments
"You Look Healthy" Yet MS Impacts Our LivesOh my, we have all heard the “You have MS? But you look healthy!” And oh how that so bugs so many of us. I know we have all heard...Reactions0reactionsComments7 comments
The Change I Did Not ExpectI did not see it coming in any way shape or form. I was truly blindsided by not just the event, but the fact that I probably should have anticipated...Reactions0reactionsComments2 comments
The Inhumane Disability System: Part 1When you stop and think about all of the things that can make multiple sclerosis worse, stress is likely near the top of the list. As I write this, I...Reactions0reactionsComments20 comments
MSAA Releases Educational Video Series: COVID-19 Vaccines and MSThe Multiple Sclerosis Association of America (MSAA) has released an educational video series about COVID-19 vaccines. Titled COVID-19 Vaccines and MS, topics include the importance of getting vaccinated and receiving...Reactions0reactionsComments0 comments
Time to Regroup and DeclutterWhen I feel like I cannot handle the mess, I regroup. My home, my things, my thoughts, myself. I cannot focus on anything until I clean up everything around me...Reactions0reactionsComments14 comments
Steroids for MS Relapse: Benefits and Side EffectsNobody with relapsing-remitting MS wants to wake up facing a new flare-up (aka relapse, attack, or exacerbation). The pain, dysfunction, and disability that it can bring are no joke. In...Reactions0reactionsComments7 comments
How to Beat Summer Heat: Ice Packs in the BraSummer is in full swing! It’s too hot and glaringly sunshiny to spend much time outside. What happened to the perfect in-between weather? A question I seem to ask every...Reactions0reactionsComments11 comments
Talk of Toxic Positivity Was Toxic to Our PositivityWe were having a hard time wrapping our brains around what defines “toxic positivity” and at what point looking on the bright side was regarded as such a dark place...Reactions0reactionsComments14 comments
Devin’s Tips to Get Doctors to ListenWhen you live with a chronic illness like multiple sclerosis, doctors should be a source of hope. They are who you go to for help in fighting this unwelcome invader...Reactions0reactionsComments24 comments
How to Manage Muscle Spasticity for Improved Voiding of Bladder and BowelI work as a pelvic floor physical therapist and often treat those with a diagnosis of multiple sclerosis (MS). As many of you may have experienced, emptying the bladder and...Reactions0reactionsComments16 comments
Aging Out of ResearchI have been, and remain, an advocate for multiple sclerosis (MS) research, especially for African-American people living with MS (PLwMS). That support is not limited to the clinical forms. Quality...Reactions0reactionsComments6 comments
MS in My 20s Part 4: How MS Impacted My Mental HealthI was diagnosed with multiple sclerosis (MS) just a couple of months after I turned 20 years old. A few years before that I started experiencing random bouts of depression...Reactions0reactionsComments39 comments
MS, You Have to LaughOK, I know what you are thinking, “He has finally lost his mind. There is nothing funny about MS!" Nope, I haven’t lost my mind - a laugh and finding...Reactions0reactionsComments25 comments
Things to Remember if You Feel Like a BurdenA diagnosis of multiple sclerosis can elicit a wide range of fears and emotions. From that very first day when I was diagnosed through today, one of these concerns has...Reactions0reactionsComments32 comments
The Jungle of Looking for a Job With MSLiving with a chronic, progressive disease like MS presents many challenges. One of those challenges might be related to employment. Can you keep working when diagnosed with MS? How do...Reactions0reactionsComments18 comments
Tired of Explaining Yourself to the Entire World All the Time? Me Too!“Lucy, you gotta lotta ‘splainin’ to do!” -Ricky Ricardo, from the series I Love Lucy. “I never explain anything.” -Mary Poppins, from the film Mary Poppins. Folks, I feel like...Reactions0reactionsComments36 comments