Urgh where to start. I have been on this road for way too long without being officially diagnosed. I feel like I have zero support and without a diagnosis and it feels like nobody believes me.
I currently take a plethora of pills trying to keep all my symptoms in check - things like fatigue, tingling, burning sensations, frequent urination, etc,
As far as the doctors go, below are some of the more recent comments:
- this looks like MS
- You have an autoimmune disease but we aren't sure which one
- It's MS but we aren't going to treat you because we are saving the treatments for those who really need it as they are expensive.
I feel like I am trying to navigate this blindly. I have no idea how to manage every day symptoms and absolutely no help from doctors or specialists. At this time my way of coping is plowing thru everything until I physically just can't do it anymore - I'm guessing this isn't the best approach.
Any tips or tricks would be appreciated.
K.