Oh my God that is so sweet for you to reach out! Thank you for the resources. I will definitely check them out! It is scary. I've told numerous people, it doesn't matter if your child is 36 or 3. It's still your child and for them to be in pain of any kind is heartbreaking. It makes it worse when they can't tell you what they're feeling. I would take it on in a second if I could. It's just been frustrating because she's seen numerous neurologists and even though they know about it, nobody has ever dealt with it directly. So we are waiting to talk to a specialist but I'm sure you're familiar on that process and how long and drawn out it is. I just don't want to miss an opportunity to do anything I can to help her. And I don't want her degrading in the process. When she was at the hospital she got another lesion that was only found by MRI. Since she's not actively getting MRIs right now, I don't know if there are any new lesions. I can only go by what she tells me and unfortunately that doesn't really help sometimes as cognitively, she's still confused and everything is "fine" . Again, thank you for reaching out so quickly and for the resources. I will definitely check them out! Dena