After a life-altering flare in 2019, I got extreme - and I mean EXTREME, hard to breathe sometimes, extreme - muscle tension in my torso, from my collar bone, down to the top of my thighs, all the way down my right leg to the tips of my right toes. I also need to use a walker because of this “suit of armour” affecting my balance.
I take 20mg baclofen 2-3 x day to keep the muscle spasms at bay, but it, and nothing else prescribed, has helped with the EMT. Nor has acupuncture, CBD, yoga or massage.
What *has* helped reduce the EMT (but not got totally rid of) is THC tincture and gummies. However, I don’t like the psycho reactive effects of THC, so I rarely take either. But for those 24-72 hours I can breathe easier and move without pain…
I stretch every day, multiple times a day, and have physical therapy once a week utilizing the underwater treadmill.
Does anyone know of anything that may also work?
Thank you all for any suggestions you have. I’m desperate at this point.