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Newly Diagnosed

Share your experience as a newly diagnosed MS patient.

For those who are already diagnosed, what advice would you give to someone newly diagnosed?

Get the conversation started.

  1. I was diagnosed with MS in January, although I've suspected something was wrong a year before that. I was full throttle and ready to take this disease by it's horns when I was first diagnosed...however I am now having a second relapse only a couple months later and my positive charge has been replaced by fear. Fear of the unknown and what could unexpectidly happen down the road.

    1. Lovelady,

      Welcome to MS.net. Getting a diagnosis of MS is stressful enough, but having another exacerbation so soon can be frightening. I know, because during my first official 6 months with MS, I had 3 relapses. So many steroids, so many fears. If you are undergoing IV steroids (Solumedrol) right now, please know that it can mess with your emotions a great deal and will pass. Also, hang in there. The first year is the toughest after diagnosis, at least it was for me. Learning about the disease and how it will be for you individually is challenging. Be kind to yourself and try to stay patient with yourself. Anytime you want to vent, please feel free to do so. We're here to listen and support.

      Lisa

      1. Relax! A new diagnosis feels emotionally devastating and I found myself, a single mother, frightened out of my wits! You may feel the need to ponder all of the possibilities, but don't forget the probable! Most people with MS are able to live well.

        1. , I am glad you joined this conversation! I think your advice is spot on and a great addtion to the suggestions shared by other community members.

          Thanks for taking the time to share!

          Best, Erin, Team Member.

      2. Educate yourself!! I have a wonderful neurologist who has been open-minded and patient with my progressive MS past 6yrs
        I am my best advocate

        1. Being your own advocate and staying informed makes such a difference—kudos to you for taking charge of your health. 💪 -Latoya (Team Member)

        2. ,
          Wonderful advice!
          It sounds like you and your neurologist have a great partnership.
          Keep advocating for yourself and stay well!
          My best, Doreen (Team Member)

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