Ccheeky
We live in a rural mountain area with no Ms specialists. Need to find one in the state!
kayleighhill Community Admin
Ccheeky Member
Thank you Kayleigh, I appreciate your response. We would like to find someone who has a specialist that they love and trust, and who is also accessible, as in not a long drive! Perhaps someone willing to do tele health. Again thank you for your suggestions!
kayleighhill Community Admin
chickenlady Member
Hello I live in NC and I am going to be very honest with u, I have been so frustrated at the doctors I have seen here in NC ! I don't feel like they are listening to me ! My body reacts so strange to meds and I have had violent reactions that I am terrified of the MS drugs ! If I am afraid of them then the docs don't have time for me ! Also I have read that the MRI needs to show the gray matter more so than the white matter for a true progression of the Dx and they just look at me like I am crazy ! I try to keep up with my health care so I can stay up and going but when I endure this and I walk out of the office I feel like I am on bottom of the ocean floor ! So o have agreement with my family doc that I see him every 3 months , he knows me very well and I know my body and if any changes I get in touch with him immediately & I don't feel like I am dismissed when I tell him something ! He is caring , compassionate , and most of all he listens to what I have to say and never ever makes me feel disrespected or like I am just shooting out in left field when I tell him something ! Being an MS specialist doesn't mean that is the best care specialist for someone ! That is my take on this ! I have had horrible experiences with MS specialists !!
Deanna Morgan Member
I'm sorry that you have had such a hard time with the symptoms and finding the right DIC. I live in Laurinburg and I have to drive to Raleigh. I go to Raleigh Neurology and see Dr. Scagnelli and his PA and Nurse practitioner, Henry Lay, They are great, I did see Dr. Amiri 1st but he is terrible and does not listen to you at all. Good luck to you, big hugs!!