Charlotte Sinclaire
Hi, I am a 20-year-old woman and was just diagnosed with MS. I haven't obtained my medicine yet and my family and I only know basic information so far. I would really appreciate it if anyone could give me advice or what I can do to prepare for attacks. I am very new to this and we are learning new information which is a little overwhelming. Any and all information is appreciated!
Lori Foster Member
Hi
Charlotte Sinclaire Member
Hello Lori, Thank you so much for the information! I don't have specific questions because everything is new right now so it is hard to even think. I haven't had an attack yet but I would like to know if I can even prepare for one. I haven't been able to find a group for young people with MS yet which would be nice. I will definitely buy a journal thanks for the advice!
hairbrain4 Member
Remember that you have MS & that MS doesn't have you. You are in charge not MS. Keep a positive attitude, it helps during the rough days. Everyone's MS is as differnt as you are from other people, although there may be similarities. Continue to research, read, listen to videos, attend seminars as much as you can. Knowledge is power. The more you know the better you will be equipped to handle a new situation as it arrises. You should be able to talk to your neurologist frankly and ask as many questions you need too. If and when you have a flair up make sure you call your neurologist and report it to them.
There are a lot of Disease Modifying Therapies (DMT) for MS. Research/study them so you can talk to your neurologist about which one will be best for you. You may have to try a couple of differnt ones before you find one that works for you. I am on my 4th one in 16 years.
It's important to not be afraid of MS, it has no control over you, it just agrivates you & makes you have to do things a little differently than you are used too. Be aware of how your body & cognitive functions are behaving, especially after starting a DMT, give it some time to work as it may take a month or more before you notice any changes and how well you are tolerating the drug. It's good to journal daily so you can watch for any progression that may occur.
Write down questions for your neurologist because you may forget them by the time your appointment comes, which is not uncommon for people with MS.
The most important thing to remember is to try to stay stess free as much as possible. Stress will agitate MS as it will any disease. Relax and stop to smell the roses!
Lori Foster Member
What wonderful advice,
hairbrain4 Member
My motto is "Everyday is a new adventure, you never know what's going to happen."