Today, I woke up on time and able to pull myself out of bed and get to work on time and in a good mood. The weather was nice, my muscles felt okay, I wasn't trembling or overly spastic. I had about three hours of hope that maybe this wave I've been riding for the last six months might be finally ebbing for a little while. Maybe I can get through today as if it were a pre-December 2023 day. Maybe I can make it through the day without stumbling, without dropping or throwing something, without banging into a wall.
But by mid-morning, with the pressures at work mounting and my energy already waning, I gave in to the realization that this ideal day could be entirely in my rearview mirror.
I made it through and managed to check all the to-do boxes for today, and for that I am very grateful. I sit here now on the couch trying to find a comfortable position to relax my body that has slowly and then quickly betrayed me, and can't find a spot that eases the pressure on all of the spastic muscles.
It was a good day, not a great day. I'm celebrating that I actually ticked all of the items off my list. Sad that as I did the cacophany of symptoms slowly crept in to keep me company and remind me that they're here.
Turning to this community has been amazing. I read through your stories and your discussions and comments and it's like soothing aloe on a burn.
I would love to hear about your day if you'd like to share. ๐