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Can you get SSDI taken away if approved?

I am battling getting SSDI…. And i just saw another post that someone got their SSDI taken away after being on it for 3yrs…. Is this even possible? This is terrifying….

  1. Hi, ! I replied to the member you mentioned, but I wanted to share the information I found with you, too.


    While not common, SSDI benefits can be taken away. Here are some circumstances where this may occur --


    You reach retirement age<
    br/You return to work>
    Your health improves
    You do significant volunteer work (I didn't know about this one and this is really rare, but it can be shown that your health is improved enough that you can volunteer, so you may be able to return to work, if that makes sense).
    You go to prison or halfway house or a mental health care institution


    Please keep in mind that I am not a legal expert or an SSDI expert, so take this information with a grain of salt. And, this may not be a complete list either.


    Best, Erin, MultipleSclerosis.net Team Member.

    1. Thank you for your response. I saw getting married as one of the reasons. Are you referring to SSI which is based on income? But you can also lose SSDI if you get married?

    2. , that was a mistake on my part! Apologies! Upon further checking, any SSDI you collect based on your disability *should* be unaffected should you choose to marry. I confused SSI and SSDI there and thank you so much for pointing that out! I am going to remove that part of my original post to avoid confusion, but thank you!


      Best, Erin, MultipleSclerosis.net Team Member.

  2. Hi , while it isn't common, SSDI can be taken away. I actually just finished a regular review of my benefits (thankfully there is no change, however, as you might imagine, it was an extremely stressful process). As far as trying to get it is concerned, I cannot recommend a disability lawyer enough, it makes a huge difference in getting approved.

    1. Hi! Thank you for your response. This is terrifying… can you please share more about that review process? Why a lawyer? I just read and talk to a lawyer that i will be responsible for fees that are NOT included in the fee they charge to the government. I have a lot debt and no $$$$…. This is too much….

    2. Hi . Normally, I would suggest looking for a lawyer who will work for a percentage of the settlement, but that wouldn't apply in your case since you are talking about the review process. Have you called around a bit to other firms? Keep in mind that the previous poster said her daughter's neurologist massively messed up her records and possibly gave the courts someone else's. The records showed that she lives alone and cares for herself, which isn't true. Chances are slim that same thing will happen to you. Gentle hugs. - Lori (Team Member)

  3. I was diagnosed in 2003 and I have been on disability since 2004. I just got a letter last year saying that I was now approved for permanent disability. For the first 8 years I worked part-time never knowing, that could have made me lose my disability. However, without it life would have been impossible. I was raising three kids on my own. So I guess, the short answer is yes, they can take it away anytime they like. The same thing just happened with my ex-mother-in-law. Hers was suddenly taken away.

    1. Hi! Thank you for your response. Can you share about those reviews and what is permanent disability? And… suddenly taken away? Could i ask how? And why? That is terrifying!!!! Did they tell her why? Can she get them back???

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