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A poetic moment...

I find myself suddenly
Irrationally
Entrapped by...
Boundaries that
Never existed before

I also see, surrounding me
Amazing love and and support
Both in real life and my community online

But in contrast
Looks of disgust
Sighs of indignation
Judgement from both
Passerby and friends alike

All because life has changed
Evolved
And so have I...
Suddenly I am weak
Where I was strong yesterday.
Suddenly I am slow
When I was fast yesterday.
Suddenly I am exhausted
Irritated
Mean sometimes
When I was beneficent yesterday.

And all I am asking for is grace
Not forgiveness
Or invisibility
See me
But see me today for all of my faults
And my flaws
And my fumbles
And my stumbles
And my falls

See me
And hear me
Hear me when I say I can't
Or not today
Or I'm tired
Or it's too much

And hear me when I say I can
Get out of my way
I'm doing my best
Get out of my way
I can accomplish this
I'll ask for help if I need it
Get out of my way

Neurological disease
Does not equal dismissed

I still have a voice
And a body
That sometimes still works
So let me use it!

*Not my best, I've done many better poems, but I feel this. So much. And I think that maybe some or many of you will relate.

  1. And because I cannot edit, sorry...if anyone wants to share their creative responses to their journey or experiences, I would love to see it! I used to paint and draw, but the tremors and twitches have made that part difficult.

    Much love always ๐Ÿ’œ๐Ÿ’œ

    1. ,
      You have an amazing talent. I certainly hope you will continue to pursue this incredible passion.
      All my best, Doreen (Team Member)

    2. thank you for that! In my heyday, I actually self published three books on Amazon, they didn't have a lot of sales, but it was huge to me. I had been making chapbooks to sell at poetry readings and events for years, and those chapbooks funded my cross-country adventures for two years. I am a huge advocate of taking creative expression and molding it to help heal the soul. When I wrote this poem, I got that spark of excitement back, and am really looking forward to seeing how it unfolds this fall.

      In my competition days, I actually met Maya Angelou, she was hosting the event I competed at, and she actually sought me out after the competition to tell me how much she enjoyed my pieces. She bought a chapbook! That's my fan girl moment, and I'll have it forever!

      I would really love to see any creative expressions that people want to share, be it art, poetry, prose, etc all.

      ๐Ÿ’œ๐Ÿ’œ

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