UTI'S - MY EXPERIENCE

By ms_n3pp8k

1 min read

Let's start by saying that everyone has different reactions, but this is mine...

I know when I get UTI'S, I have been prone to them the last 6 years, so I am almost always late to go to my GP or Urologist to get meds. I don't know why I wait so long because the meds make me feel like myself (my MS self). To me, I know my body and when I have developed a UTI I don't get the normal pain when you urinate or odor until it's too late....this normally happens 2-3 weeks later....I normally start with hot-flashes, then my MS symptoms (especially my walking-I used to refer to it as bouncing against the walls) go haywire, then the frequent peeing. I still work at an office (thanks to my wonderful husband driving me there) so I try and make my appts at the end of the work day (if I can-they are usually last minute calls), but my FMLA Sick Time is running out quick with my regular neurologist (and MRI, bloodwork, thyroid etc) appts. So I will have to use unpaid leave soon. I cannot retire yet-I am 52, but my husband is only just 62 (and self employed) and I carry the health insurance...the way things are now is that if I retire now they will cover me but not him....but I am getting ready!?

There is a lot to think about...the urologist is talking self-catherization? but I am reluctant...but if it will limit or eliminate UTI'S I am willing to try anything.

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h3jkey Member
I have a response and I hope it helps!!! I'm a wee bit younger, but I suffer or used to suffer from constant UTI's. I now self cath and take a macrobid at night and haven't had one since. I started this before I was truly diagnosed! If you have any questions, I'm here. I'm not shy when it comes to this disease either!
Laura Kolaczkowski Moderator & Contributor
Yep! I was in the same boat - not a clue with a UTI until I was already past the quick fix point. intermittent self-catherization (set aside the ick factor) works wonders and you will be amazed at the difference. I also take macrobid at night to stave off any infection. The combo is worth trying.And also don't just settle on any old catheter - get the Cure twist if your insurance will allow (you can request samples of all of these on line through the manufacturer). I'm with lachambless - don't be shy about asking questions. -Laura, moderator
192kpb Member
Hi Julie I have gone through exactly what you are going through, I have found the antibiotic no longer work, so have tried with some success natural things such as cranberry juice and natural yogurt every day, touch wood it seems to be working for me, worth a try. I had to retire from work due to ill health in October 2013 it has been hard not only financial but I do miss the contact with others, and my Husband has become my full time career, but there are always people worse off than me, so I try and look at what I can do not what I can't. One thing that keeps me going is my blog I started recently, the comments I have received are so encouraging, and it looks as if others like what I say so will keep at it, have a read if you get a moment and add a comment, it might help others, <a href='https://www.amazon-lady.com' target='_blank' rel='noopener noreferrer ugc'>http://www.amazon-lady.com</a> Good luck with everything Amazon lady
sevensix Member
Catheters are notorious sponsors of UTI's. I averaged 3-4 per year. Cathing, however, is a personal guided management decision for bladder behavior. It is quick, easy, and painless. It took me two weeks to overcome the Yuck factor and now about as routine as brushing one's teeth. Just observe sanitary technique and you'll be a pro in no time at all. -sevensix
1. Margot Community Admin
 Thank you so much for sharing <inline-mention user-id="3990937" username="sevensix"/> ! I am sure it will help many to read your experience. - Margot, <a href='https://multiplesclerosis.net' target='_blank'>MultipleSclerosis.net</a> Team Member
2. sevensix Member
 Thank you Margot. I realize the original post is several years old precluding a prompt reply but catheters seem to suffer from technical stagnation. MS does have its humorous moments like the first time I cathed at home following urodynamics. The catheter has a colored funnel on one end that, to an observant patient, is directed into a contained such as a toilet. This is a no brainer. Naturally, I am nervous at my first attempt. With the sanitary preliminaries out of the way the cathing goes surprisingly well until I noticed in my heightened state of nervousness I (the funnel) was nowhere near the toilet when a funny noise drew my attention gazing to the bathroom floor was a growing puddle nearing flood stage. Oh well. We all enjoyed a good laugh. (I have all kinds of medical stories. Stay tuned.)