Types of MS

By pinkdotsx4

1 min read

I was diagnosed with MS January 2018. To this very day, I have not been told what type MS I have by my three doctors.

Clear diagnosis of MS

I have had Triple Negative breast cancer (years 2003, 2010, 2012, 2014) and received Chemo every time. I have also had back surgery (x2) and neck surgery (x3) over the years. I will be 71 on 1/1/19. That completed the spinal tap which gave the clear diagnosis of MS.

Painful symptoms

I don’t know how I should really feel and how long, but have experienced the following symptoms all at one time this weekend. Woke up feeling extremely sore all over, severe headache in the back of my head, burning of sore feet and legs. Also it felt like someone standing on my chest and I was short of breath. I could not move.

Is this what MS feels like?

Just want to know if this is what MS feels like and what to do for it other than to call 911. If there is a medication that I can take that WILL NOT INTERFERE WITH MT IMMUNE SYSTEM & cause my cancer to return.

I am tired all the time and hot to the point of sweating very much.

Please help

I hope someone can provide some insight to my situation, recommend a medication, and suggest the
type of MS I may have.

Gratefully,

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itasara Member
I was given dx of RRMS in 2005 after one major sx of Transverse Myelitis. I am not certain what RRMS means for me. Nothing is clear cut, and those items that do bother me are also a sx of aging. Now that I am 70 it isn't so untypical to have some symptoms that could be MS or aging.
1. pinkdotsx4 Member
 itasara, I read your story. Of course I had to look up the diagnosis to see what is was. I do want to ask what were your symptoms? I don’t know much about MS. I am reading a lot so I can make goog decisions when the time comes. I was a go-getter, move quickly, multi tasking person. Now I am just a turtle that try’s to make it through each. In stead accomplishing 6 things a day, I try to make the effort to accomplish 1. I get so frustrated not being able to do things. I can’t stand a long time. (Over 8 min.), I have no strength to life anything but my purse. Can’t walk but 76 steps before I have to sit. I am sore all over, stomach feels squeezy, feet and legs burn most of the time. I just want to know and understand what going on. My doctors are saying MS, and that’s all I know. Oh yes I am 70 years old also. I hope you get better and feel better soon. Happy holidays. pinkdotsx4
Erin Rush Community Admin
Hi pinkdotsx4! I cannot provide medical advice, for your safety. However, when any of our community members experience new or worsening symptoms, we recommend that they contact their physicians. In your case, with your medical history, I would definitely contact your physician as soon as possible (this weekend). If any of your symptoms worsen, you may want to consider seeking medical attention. Also, do you have a physician that is fully informed about your health conditions? That physician would be your best bet for finding potential treatments that will not interfere with your immune system or risk a return of your cancer. Many treatment options for MS do have potential serious side effects. I think it would also be helpful for you to know WHAT type of MS you are dealing with. More information can help you make a more informed decision. And you probably are pretty practiced at taking charge of your healthcare choices and treatment options. Don't hesitate to push your physician for more clear answers. Good luck and I hope the rest of your weekend is symptom-free! Best, Erin, <a href='https://multiplesclerosis.net' target='_blank'>MultipleSclerosis.net</a> Team Member.
1. pinkdotsx4 Member
 Thanks Erin for reaching out. Well since my episode last Saturday things are pretty much steady. I get very very tired all the tine. I feel like I have been drained of energy. I get up take a shower. Rest about 45 min. Put my clothes on, rest about 15 min. Fix my oatmeal in the microwave and warm my muffin, make a cup of coffee and sit at the table waiting fo at least 15 min before I can eat. I am so weak at times it’s frightening. I sent two of my doctors an e-mail to to inform them how I was feeling an what happened last weekend. Tomorrow is Monday, Dec 16, which will be one week since I had my first relapse/encounter, I am calling it and I have not heard a word. At this point there is nothing else I can do but schedule an appointment and hope I can get one this year I really appreciate your input. Happy holidays. Pinkdotsx4
2. Erin Rush Community Admin
 Hi pinkdotsx4! I hope were able to get an appointment to see one of your doctors. I am sorry your physician's offices have been unresponsive to your attempts to contact them. I hope you are feeling better by now AND you get some answers (and face time!) with your physicians. Best, Erin, <a href='https://multiplesclerosis.net' target='_blank'>MultipleSclerosis.net</a> Team Member.
golgotha Member
Caveat: I'm a MS patient and not a doctor and I've had a somewhat odd MS journey. When I was diagnosed back in the 80s they weren't sure what caused MS and some neurologists thought it was a virus. Today most agree it's the immune system that's the problem. As such, the various disease-modifying therapies (DMTs) are essentially immuno-suppresants of various types. They seem to all have some dramatic side effects and are powerful drugs. They also vary in price and your insurance and what they'll cover in our national-health-care-lacking country is important. If you do an Internet search on "ms DMT summary" you can find a few summaries of the various DMT drugs by different MS groups. I'd recommend reading more than one to get a basic idea of what your options are, and then discuss it with a neurologist -- and a neurologist that has experience with MS (not all do).