I'm still me

By sha1999

1 min read

Dear family and friends,
First of all, MS is NOT contagious. Sadly, some people still think that it is.
I am trying my best to remain strong and independent, but it`s getting harder as this illness keeps robbing me of so many things. Trust me when I say I`m tired. Just a shower is exhausting. Yes, I go to bed early when the simple day to day things wear me out. Please keep inviting me to events because some days are actually good and I do miss fun! Most of all, please understand, this is a rough fight and I need support.

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Lori Foster Member
Hi <inline-mention user-id="4084758" username="sha1999"/> . I hope you will share this post with your family and friends. It can be hard to comprehend that someone who keeps declining your invitations really wants to accept and to be invited again. Sometimes, people make assumptions and just stop asking. Good communication can help tremendously. Please know you are never alone. We are here for you whenever you need support or a safe place to vent. Thinking of you! - Lori (Team Member)
1. sha1999 Member
 Thank you! It took me an hour to sign in, but hopefully I`ll get the hang of it.
2. Lori Foster Member
 Hi <inline-mention user-id="4084758" username="sha1999"/> ! We have changes to the site coming midweek that should make it much easier to navigate. If you have any trouble at all, email contact@MultipleSclerosis.net and our site leads with either help you or send you to the right person. Warmly, Lori (Team Member)
Janus Galante Moderator
sha 1999, I think your story to your family and friends couldn't be better. I love your honesty and forthrightness, along with putting it plain...how they could be of a help to you! Thinking of you today....Janus
kitsy Member
It took me several years to realign my social circle. Post-MS I lost most of my former friends. At first, it hurt so bad when they did activities I couldn't do. Then I started taking exercise classes I could manage and met new people : ) I had to quit work, which had always been a large part of my social life, but I met my older neighbors who were home during the day. I'm surprised by the people I knew pre-MS who I wasn't the closest to, but who are now my besties! I am an extreme extrovert, but with my new energy level I find I have just the right amount of friends! 
1. Lori Foster Member
 That is so good to hear, @kitsy! A diagnosis like this can certainly change the way you think about friendship. I am glad you have good, supportive people in your life. Warmly, Lori (Team Member)
trea Member
hang in there friend My dx was 2001 and recently found getting dressed complicated. It's so annoying. Confusion started about 2-3 years ago and doing the things I use to do are a bit more interesting as I have to find creative ways to accomplish normal tasks. My hands stopped working before Thanksgiving 2000, That was a fun holiday preparation. I'm stubborn and hesitate asking for help (yes, silliness is my co-pilot). I understand the frustration in being left behind. I find many people don't understand the day to day changes MS offers [just because we can't on Monday - doesn't mean we can't on Tuesday]. Although a little terrifying for us; this is just as scary for our loved ones. Keep up with your friends. Maybe let them know that because you can't today, they can count you in for tomorrow . Take care of you. True friends will have your back and understand some days YOU get to be "delicate". [Yes I just rolled my eyes typing that] Have a great day and enjoy 2011.