Early Start
I was first diagnosed when I was 17 and was stuck in the hospital for a long time because I had lost all function of my tongue, so I couldn't swallow, eat, or drink. I turned 18 in the Hershey Medical Center and then finally got to go back to school. After that I tried every drug there was and had every nasty side effect you would think of until I started Tysabri and that was the only thing that helped and didn’t make me terribly sick all the time. I am tired all the time. I have a 5 year old son and a 1 year old daughter, and it makes it hard for me to do everything they want to do being so tired and in pain all the time. I try really hard to make them happy and while I work being a single mom. I have to give my mom a lot of credit for helping me out, but she doesn’t fully understand how I feel all the time. Especially with the anxiety and depression on top of the MS. I can’t find a job that I actually enjoy because I have issues with focusing and memory loss. People think I look good so I should feel good and that’s just not the case. I wish I had someone who really understands.
Join the conversation