...I don't believe you ;)

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   chalknpens Member

   <p>Kasia, you sound very much like me. I have what a neurologist once called &#39;benign&#39; MS ... without symptoms for very long times, but with ongoing damage shown on MRIs. Benign MS symptoms are invisible: dizziness, loss of memories, organization, words, strength. You are as well as you are because of your exercise. You probably eat healthy as well. I felt guilty for years because I had no visible &#39;needs,&#39;and felt I was a fraud. But what you have is as real as those who need physical accommodations - which you and I may never need. What we need - patience and understanding from others - kindness and assistance in remembering what we have forgotten - it is so invisible and easy for others to forget about. <br> <br> Doctors and researchers themselves are not paying attention to the needs of patients with &#39;benign&#39; MS. It is no wonder you feel unsure. They are unsure, and uninterested in solving the problems we face. We are the unrecognized people with &#39;benign&#39; MS. But we are here, and have to feel that we count, too, and are worth investing in, too. You are doing everything that you can do for yourself. I admire you. I am in my sixties and it is harder to exercise. I do eat right. We have to do for ourselves, with support from the very few who truly know and care about us. It has to be enough. Be well, my friend, and I will, too.</p>

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      chalknpens Member

      <p>Kasia, I stopped the daily injections almost four years ago, as they troubled me and had no apparent benefit for me. It is as true as it was when I stopped four years ago. I am no worse for doing without them. They slow relapses for some ... for people like us who do not have rapid and frequent relapses, there is nothing the injections can do for us.</p>

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