Chronic pain is all I know now

I am almost two years into my diagnosis and I cannot believe what has happened and how our lives have changed...

I suffer much pain and other losses from the disease. I am thankful though that I can still see and still walk, I know those days are coming I just hope not for a long time. I suffer terrible headaches, numb/tingling hands, painful feet, calves and back, loss of bladder control completely, terrible fatigue, emotional rollercoaster ride 24/7 and I take many pills, injection and have had numerous tests done.

By providing your email address, you are agreeing to our Privacy Policy and Terms of Use.

I am soon to go for my Urodynamics test and I am not looking forward to that. My treatment is not working and my pills don't help much either.

I was tested positive for the JCVirus so my neuro is hesitant on starting me on Tysabri. I currently am on Rebif, but with all my aches and pains and bladder loss, its clear it does not work. I'm scared...

I also had Optic Neuritis but it did go away on its own, not to have returned thank GOD. I just feel almost all the feelings of an MS Patient and it really hurts...

I keep the faith, pray my children never fall ill and after the dark hours pass, I pick myself back up and start again.

Thank you for letting me share...

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The MultipleSclerosis.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Join the conversation

Please read our rules before commenting.