The Caregiver as RefereeThe role of caregiver to MS patients is multi-faceted. Provider. Support system. Cheerleader. Head chef and bottle-washer. Trusted advisor. If you care for one with MS, most of the roles...Reactions0reactionsComments0 comments
Why We Need to Go Outside Every Day If We Have MSI recently ran across a discussion in a forum on the subject of local workshops for forest bathing. (Yes, this is the kind of thing you encounter living in the...Reactions0reactionsComments7 comments
The "Can I Just...?" PhenomenonThere are times when MS is ‘easier’ to deal with. Times when it's not so blatantly ‘there’. Those particular moments are the times when I can just ‘be’. That's when...Reactions0reactionsComments26 comments
The Emotional Toll of Chronic IllnessTrigger WarningThe content includes information related to mental and emotional distress and it might be upsetting to some people. If you or someone you know have thoughts of suicide, have...Reactions0reactionsComments0 comments
Gaining Weight With MSEvery so often, I’ll glance at myself in the mirror and think, “Wow, what happened?” After two decades of battling an incurable illness that plagues me with mobility issues and...Reactions0reactionsComments8 comments
Your Shortcomings Can Be Your SuperpowersWarning: This may be a trigger post for some. Negativity. Why it is so popular, I will never understand. I used to be a negative Nancy myself, so I do...Reactions0reactionsComments14 comments
Your Bowel Issue Questions Answered by Your Pelvic Floor FriendsKathy Reagan Young of FUMSnow.com and Erin Glace, Pelvic Floor Dysfunction PT, are back in this video to answer YOUR questions about Bowel Issues in #MS. Their first video for...Reactions0reactionsComments4 comments
What If It's Not All MS?I was diagnosed with Multiple Sclerosis (MS) in August of 2010 at the age of 20. I have been told by more than one neurologist that I have a pretty...Reactions0reactionsComments19 comments
Easy Assembly: The Life of My Hands After MSIn 2012 I had a major relapse that sent me to the hospital in excruciating pain that a shot of Dilaudid (Hydromorphone) barely took the edge off. I remember my...Reactions0reactionsComments0 comments
FES As a Way to Improve Mobility of People with MSFoot drop is when disruption to the nerve pathways between the legs and brain means that the front of the foot cannot be lifted to the correct angle when walking...Reactions0reactionsComments3 comments
An Uncomfortable Truth: No $ In CuresIn a development more shocking than the capture of a live Bigfoot, a recent Goldman Sachs research report (click here and here) states in black-and-white what many have long suspected:...Reactions0reactionsComments5 comments
Struggling To Be PerfectAs he drove the car, I stared out the window from the passenger seat. Daydreaming. Watching my life pass me by. Reflecting on everything I had voluntarily and involuntarily given...Reactions0reactionsComments43 comments
The Emotional Roller Coaster of an MS Diagnosis, Pt 2In Part 1, I shared how the news of some recent friends' diagnoses (or suspected diagnoses) of MS have, in some ways, triggered memories of my own emotional roller coaster...Reactions0reactionsComments2 comments
Independence Valued“But I wipe my own a--! I wipe my own a--!” cried the little boy, Julian, in the movie Big Daddy as he was pulled from the adoptive home he’d...Reactions0reactionsComments0 comments
I’m Not Broken Because I Use a WheelchairI opened my email and read the headline, “Out of the Wheelchair and Onto a Bicycle: Dr. Terry Wahls' Story.” I looked at Dan and rolled my eyes. Not that...Reactions0reactionsComments56 comments
Cognitive Dysfunction: When Reading Becomes a ChoreThe symptoms that go along with cognitive dysfunction because of multiple sclerosis are areas that I talk about a lot. The cognitive problems that have hit me in the years...Reactions0reactionsComments17 comments
Something Worse than MSMultiple sclerosis is hard to live with, on that we can agree. But I’ve heard some pretty strange things from people over the years about stuff that vexes them more...Reactions0reactionsComments2 comments
The Itch Is RealI’ve recently been weaning off of Cymbalta for personal reasons. With the wean I have noticed a lot of withdrawal symptoms. My worst symptoms so far have included fatigue, intense...Reactions0reactionsComments5 comments
Dating with a Disease – Part Three: Intimate Issues (Doing It Dilemmas)As I continue on in my series about dating topics, I may not being going in any particular order. I may also cover topics that apply to marriage, too (though...Reactions0reactionsComments4 comments
Touch Typing: One Way MS Has Affected My HandsI used to type pretty fast. Growing up, I remember taking computer classes that (among other things) focused a lot on the proper way to type. Each of your 8...Reactions0reactionsComments29 comments