Love Letter to the Crone I Am BecomingIt’s hard not to be totally preoccupied with my chronic medical problems. They can affect almost every aspect of my awake time and jolt me into consciousness in the middle...Reactions0reactionsComments2 comments
Is Fatigue Keeping Me From Being My Best?Fatigue is probably one of the most common symptoms experienced by people living with Multiple Sclerosis (MS). Whether it's fatigue from not sleeping well at night or fatigue caused directly...Reactions0reactionsComments4 comments
Working Remotely or Not Remotely Working?After I left my job (which I wrote about in this article) I spent a lot of time thinking about the kind of work I wanted - or was able...Reactions0reactionsComments0 comments
The Stigma Around Pain and MedicationsChronic pain on its own can be difficult to manage. Unfortunately, chronic pain and its treatment may also have accompanying stigma that makes this issue even more frustrating to navigate...Reactions0reactionsComments0 comments
Accepting the Truth After All of These YearsIt hit me the other day that I’ve had MS for half of the time I’ve been alive. I’m 28, and I was diagnosed when I was 14. And I...Reactions0reactionsComments24 comments
A Reminder from MSAA – 2019 Health Insurance Deadlines Are ApproachingThe Multiple Sclerosis Association of America (MSAA) would like to remind you of two important deadlines that are quickly approaching in December. · Now through December 15, 2018, you can enroll...Reactions0reactionsComments0 comments
Treating the Underlying Cause of Cognitive DysfunctionMany people living with MS face cognitive challenges at some point. These may be temporary, such as during a relapse or illness, or long-term problems...Reactions0reactionsComments1 comments
Current Regulations Around Opioid PrescribingOpioids are medications that have the ability to alleviate pain. They also have other properties that allow them to impact emotions and our sense of pleasure, which can make them...Reactions0reactionsComments0 comments
Life with MS: Unpredictable and UndependableAfter nearly two decades of fighting Multiple Sclerosis, my body has had some wear and tear on it. It doesn’t quite function the way it once did, except when it...Reactions0reactionsComments0 comments
Helicopter MSI retired from a state university where I happily worked administratively with the students. Namely, with first-year students, I noticed that there were three types of parents: There were those...Reactions0reactionsComments2 comments
What is a Cognitive Assessment?As discussed in Part 1 of this series, cognitive issues are a frustrating and common MS symptom. Often, people are aware that they are not as mentally sharp as they...Reactions0reactionsComments6 comments
Getting Comfortable... or NotIt’s a typical night, where not much is going on, and I’ve settled in to queue up some Netflix with my faithful dog. My pup is my shadow, always by...Reactions0reactionsComments27 comments
MS Killed It for MeBefore I was diagnosed with Multiple Sclerosis (MS), people used to ask me what I liked to do for fun, and I always struggled to come up with an answer...Reactions0reactionsComments19 comments
What MS is...MS is: Probably the most important thing MS has been is the thing I’ve pushed against for many years, so I could keep growing and making goals. It’s the critical...Reactions0reactionsComments1 comments
It's OK to Have BreakdownsRecently, I was talking to another person who is also in this daily fight against Multiple Sclerosis. Like me, she’s had to leave her career, been put on disability, and...Reactions0reactionsComments12 comments
The Invisibility of Chronic PainMany people with multiple sclerosis (MS) can manage their pain using over-the-counter or prescription pain medicines, physical therapy, and exercise. But some people experience “breakthrough” pain. This is pain that...Reactions0reactionsComments5 comments
A Change in Symptoms and What I Did About It“Would you like to use a hat?” the lab tech asked. She had just drawn two vials of blood, and the last test was a urinalysis for which I had...Reactions0reactionsComments1 comments
Target On My BackMost of my symptoms are invisible. I do, however, have one symptom that likes to come out at the most inopportune times. This symptom is something that comes and goes...Reactions0reactionsComments0 comments
What Causes Cognitive Dysfunction?Everyone living with MS knows that mobility challenges are just a small part of the challenges we face, even though they tend to get the most publicity. Multiple sclerosis also...Reactions0reactionsComments37 comments
Feel Me, Don't Fix MeWhat’s so hard about peace, love and understanding? First, my apologies to Nick Lowe, who composed the 1974 Elvis Costello hit “What’s So Funny ‘Bout Peace, Love and Understanding?” For...Reactions0reactionsComments1 comments