"When Are You Going to Get Better?"When you suffer from a chronic illness like Multiple Sclerosis, you tend to get some interesting and somewhat baffling questions. One of the more puzzling inquiries that we often receive has...Reactions0reactionsComments17 comments
Heroes, Role Models, and the Difference Between ThemWe talk a lot about heroes within the MS population. For example, whenever a fellow patient takes up a challenge such as a walkathon fundraiser, we cheer them on and...Reactions0reactionsComments0 comments
I Have Progressive MS, but I Still Can Save the DayIt is understandable to assume that my husband Dan often is seen as the caregiver in our relationship. After all, I’m the one using the wheelchair, and he’s the one...Reactions0reactionsComments25 comments
The Anxiety of Getting Sick After Immunosuppressive DrugsWhen I was a kid, I didn’t really get sick all that often. Well, no more than everyone else, it seemed. Like most people, I would get the occasional cold...Reactions0reactionsComments0 comments
When It Comes to MS, Every Selma Deserves a SarahNot long ago, the MS community was amazed when Selma Blair announced that she was diagnosed with Multiple Sclerosis. Her announcement was comforting to so many with the disease, myself...Reactions0reactionsComments2 comments
Board Up the Windows - Summer is About to HitIt’s generally agreed upon among the multiple sclerosis (MS) community that heat is bad for MS. Uhthoff's phenomenon is the worsening of MS symptoms when exposed to heat (or when...Reactions0reactionsComments20 comments
When Hope Is Not EnoughI was diagnosed with primary progressive multiple sclerosis in 2001, purchased my first wheelchair in 2008, and by 2016, I could best be described as a quadriplegic. I’m in rough...Reactions0reactionsComments68 comments
MS, Alcohol, and MeDuring a typical week, other than hanging in my yard with my dog, I manage to get out of the house about one to two times. When I do get to...Reactions0reactionsComments37 comments
Caregiver Perspective: Prepare to Become a CaregiverPrepare to become a caregiver. In 2015, research conducted by the American Association of Retired Persons (AARP) found that 43.5 million adults in the United States (approximately 29% of the...Reactions0reactionsComments2 comments
The MazeEach day, I wake up, and I begin a maze. I start out navigating through the maze pretty confidently. I feel like I can make it to the end without...Reactions0reactionsComments38 comments
Footwear: Before MS and AfterFrom balance problems to neuropathy, there are a host of reasons why the footwear that worked BEFORE MS might not be comfortable anymore AFTER MS. This loss may seem minor...Reactions0reactionsComments7 comments
When You're Fighting AloneLiving with a disease like Multiple Sclerosis can be a difficult task, particularly as you grow older. Having a good support system is crucial to living successfully with this illness. Not...Reactions0reactionsComments22 comments
Caregiver Perspective: Compassion FatigueIt seems ironic, but did you know that caring too much could actually harm you? There's a fancy name for it called "compassion fatigue." While compassion fatigue and burnout seem...Reactions0reactionsComments8 comments
The Test of Taking My Own AdviceYou think that, for the most part, you have a pretty good handle when going through tough situations. That though it's not always easy, with logic, encouragement, and understanding, you're...Reactions0reactionsComments5 comments
The Journey of Parenthood with MSI have recently come across a variety of questions about motherhood/parenting with MS, whether it’s about trying to conceive, pregnancy itself or parenting in general. I have written about parenting...Reactions0reactionsComments2 comments
At Least 60 and Can't Clean Your House? Call the Department on Aging!Often we oldies are hard put to think of an upside to being in our dotage. The body is falling apart like an old car, just like with MS, only...Reactions0reactionsComments2 comments
Thank You for Taking Our Survey!We appreciate you taking the time to answer all of our questions. Your responses will help us better understand life with multiple sclerosis. New here? We invite you to explore...Reactions0reactionsComments4 comments
Sexual Healing: Why Masturbation is Good for Your HealthConstant readjustments of all kinds are necessary when we have a neurological condition. Multiple sclerosis seems to change how our bodies work on a monthly, weekly, and even daily basis...Reactions0reactionsComments7 comments
Hiding from SoundIf you could go back to just before I was diagnosed with multiple sclerosis (MS) and ask me which of the 5 senses that I was born with was my...Reactions0reactionsComments31 comments
The Questions Get Harder and HarderSo the neurologists, journals, literature, and personal stories were pretty accurate. Their bottom line was that multiple sclerosis was degenerative. What I discovered rather quickly was that the translation to...Reactions0reactionsComments34 comments