The Difficult Small Choices of Chronic IllnessAs I sit here thinking about the rest of my day, I’m trying to figure something out. Actually, I’m agonizing over a pretty big decision that is going to impact...Reactions0reactionsComments58 comments
Support: Look and You Shall FindI was struggling to pull the infusion rack with me as we were traversing the many floors of the university hospital where I receive my MS treatment."I will be asking...Reactions0reactionsComments4 comments
Man versus CoronavirusIf you’re looking for updated information on the spread of the coronavirus, or medical advice about how it might affect people with MS, or restrained commentary of any kind, this...Reactions0reactionsComments8 comments
Mental Health & Chronic Illness: Therapy MythsLiving with a chronic illness like multiple sclerosis is challenging, not only physically, but mentally as well. For some people, a diagnosis alone is enough to cause considerable mental anguish...Reactions0reactionsComments5 comments
"You Wear It Well" - My Thoughts on PainI have written several articles on pain and invisible illness. On multiple occasions, I have been told “you don’t look sick” or “you don’t look like what you’ve been through.” Most...Reactions0reactionsComments16 comments
COVID-19 Basics for the ImmunocompromisedFor those living with chronic health conditions like MS, current news about the coronavirus (COVID-19) can be anxiety-inducing. We have questions and concerns about how the virus is transmitted, how...Reactions0reactionsComments2 comments
Caregiver Perspective: Children CaregiversSince multiple sclerosis often strikes in early adulthood, many times, the family unit includes children who mature into adulthood, watching their parents become progressively weakened by the disease. Such was...Reactions0reactionsComments1 comments
I Really Hate That I Have to Ask for HelpI know I'm not breaking any news here, but many people living with multiple sclerosis (MS) struggle to not lose their independence in life. Things that were once simple become...Reactions0reactionsComments23 comments
The Struggle of Being an Extrovert with MSAs I troll through social media, and the internet in general, I keep coming across articles and memes relating to introverts and how their “shyness” has an effect on their...Reactions0reactionsComments8 comments
Uninsured? Here's Where to Find Financial AssistanceShortly after I was diagnosed with multiple sclerosis in 2005 I lost my job and with it, my employer-sponsored health insurance. I enrolled in COBRA to maintain my employer’s insurance...Reactions0reactionsComments4 comments
MS Comic: Ringing EarsHave you ever gone to bed only to start hearing a ringing in your ears? The comic below shows how frustrating and exhausting this MS symptom can be! You might...Reactions0reactionsComments4 comments
HSCT & MS: Some Basics and My ThoughtsHope. When you live with a chronic illness like multiple sclerosis, hope can keep you going. New treatments, especially when they aren’t yet available to a majority of people, always...Reactions0reactionsComments16 comments
5 Traits That Help Me Live with MSI saw a sign that read "5 Things Money Can't Buy," and listed were: How accurate and how true because not one of them can be purchased. They must be...Reactions0reactionsComments2 comments
A Need for Better Educational Practices When Diagnosing MSWe’ve all seen it. Someone who is newly diagnosed with multiple sclerosis (MS) wondering why, months after starting a disease-modifying therapy (DMT) for MS, they are still experiencing symptoms. Or...Reactions0reactionsComments32 comments
What I Learned After Keeping a Symptom JournalKeeping track of symptoms with MS is really important for measuring how you are feeling over time and sharing that information back with your doctor. However, during bad days (or...Reactions0reactionsComments15 comments
The Puppet ShowMy options were an unconventional therapy or a cocktail of eight different pharmaceutical prescriptions. So, I rolled the dice and picked my poison. And I lived to tell the story...Reactions0reactionsComments5 comments
The Fear of Vision SymptomsMultiple sclerosis can create a lot of frightening moments. From unexpected falls to sudden jolts of pain, this disease has plenty of options when it comes to striking our hearts...Reactions0reactionsComments31 comments
How to Live with Loneliness When Living with MSI read a fascinating article about loneliness in the December 2019/January 2020 issue of AARP titled “Is There a Medical Cure for Loneliness?” by Lynn Darling. According to genomics researcher Steve...Reactions0reactionsComments13 comments
Where to Apply for MS Drug Copay Assistance in 2020Each year, MS patients can apply for copay assistance from a number of resources. These programs are needs-based but income cutoff is very generous. For example, patients whose income is as high...Reactions0reactionsComments1 comments
Medications for MS Fatigue: Do they Work?Something you'll find no shortage of when browsing the internet for articles about multiple sclerosis (MS) is information about fatigue. More specifically, articles about how different people living with MS experience and treat...Reactions0reactionsComments32 comments