One of the Best Gifts from Caregivers to PatientsWhen MS rears its ugly head, patients can experience fatigue, depression, and helplessness. Caregivers, particularly spouses, can assist in a variety of ways. One of the more pleasant ways of...Reactions0reactionsComments3 comments
Double Minority and Learning from DiscomfortIn 2016, under the MS-hashtag on Twitter, I found an invitation for LGBTQ+ individuals to partake in a study. Periklis, the researcher, interviewed LGBTQ+ individuals to study experiences of belonging...Reactions0reactionsComments11 comments
In America: What's That?The In America survey is now closed. A Multiple Sclerosis (MS) diagnosis is a shock, but what can make it more difficult is the lack of information available for patients...Reactions0reactionsComments12 comments
MS Makes Everything a Risk: My Thoughts About the COVID-19 VaccineIn life, there are always going to be instances of exposure to danger, harm, or loss. It's what we call risks. Some risks are financial, some social, others health-related. Some...Reactions0reactionsComments4 comments
Book Review of "Intention Tremor" by TK SellmanThere is so much to admire about Tamara Kaye Sellman’s reflections on her life with multiple sclerosis. At a mere 58 pages, this deceptively thin book of poetry and prose...Reactions0reactionsComments5 comments
MS Is a Lot, But It's Not Always 'It'I recently had to make a trip, much to my chagrin, to our local hospital's emergency room. Actually, 2 trips. No wonder MS takes over. Some people give it way...Reactions0reactionsComments15 comments
How These MS Treatments Work: Avonex, Copaxone, and TysabriMultiple sclerosis is an illness that has no cure. That doesn’t mean those afflicted with the auto-immune disease have no options though. There is an ever-growing number of treatments available...Reactions0reactionsComments7 comments
Your MS Is Not My MSThere is one thing that us multiple sclerosis patients have in common. We get a lot of unsolicited advice. From the moment that we reveal our diagnosis, we are bombarded...Reactions0reactionsComments8 comments
Considering Knee Replacement Surgery When Living with MS Living with chronic disease isn’t fun. Living with more than one disease can be challenging. Living with multiple chronic and debilitating diseases can really suck. I was diagnosed with multiple...Reactions0reactionsComments19 comments
All Catheters are not Created EqualThanks to my neurogenic bladder, caused by a disruption of signals in my spine thanks to multiple sclerosis lesions, I have difficulty voiding my bladder and use intermittent catheterization. I’ve...Reactions0reactionsComments16 comments
Skin Sensations With MSAs the winter trudges on, I’ve managed to get a few double takes from my friends. This is usually followed by a surprised look and a simple question: “Pants?” You...Reactions0reactionsComments13 comments
We With MS Must Be the Change We Want to See in the WorldAs recently as 5 years ago, the meme “change must begin with me” hadn’t yet captured us in the chronic community in the way it does now. There has been...Reactions0reactionsComments2 comments
MS Comic: Will You Still Love Me If...?Talking to a romantic partner about MS can be hard enough, so is there ever a right time to bring up some of the more embarrassing symptoms like bladder or...Reactions0reactionsComments5 comments
Depression Is Not Only SadnessWhen I stop and think about the wide range of symptoms that someone with multiple sclerosis might have to deal with, there’s one that is both extremely common, yet frequently...Reactions0reactionsComments13 comments
Arm Drops Keep Reminding Me of MSI am in the kitchen reaching for an onion when my arm freezes. I am holding a jar of body cream and my arm starts to drop. Whenever one of...Reactions0reactionsComments12 comments
Devin's Tips for Cog Fog: Part TwoRecently, I gave some tips on how to combat the cognitive issues that so many of us with MS encounter (see Part 1 here). Here are some more areas to...Reactions0reactionsComments7 comments
Learning and Experiencing My MSOver the years, I've shared my MS story and experiences multiple times, primarily through my writings. My audience has reached many people - from fellow MS-ers and others living with...Reactions0reactionsComments1 comments
Understanding My Relationship With Stress and MSStress is bad. It’s bad for everyone, but it’s really bad for people living with multiple sclerosis (MS). Sometimes stress can cause a temporary flare-up of MS symptoms, but sometimes...Reactions0reactionsComments23 comments
MS and the Pathway to Resilience During a PandemicAt this point, most of us have known someone who has contracted COVID-19 (and sadly, many of us know someone who has died from it). I can think of several...Reactions0reactionsComments2 comments
MS Comic: Reacting to Life-Altering NewsThe days before and after being diagnosed with MS are a tumultuous, emotional time. Telling loved ones is difficult, and they may react in many different ways. It’s hard to...Reactions0reactionsComments2 comments