Hello,
I hope it is okay that I am here! I came here because I have been researching my own symptoms for over 5 years time now and I have only ever come to one possible conclusion based off of that research, my time spent reading other peoples symptoms as well as matching their starting symptoms pre-diagnosis, and an extensive family history of autoimmune diseases. I know nobody here is a doctor, I am curious to see thoughts and opinions on if I should acquire testing and go relatively straightforward into MS testing or not.
Painful itch when warming up with any exertion of energy such as going up or down stairs, or trying to start a workout. Core temp rises, symptoms start. Also when stressed, pants made skin feel painful sting feeling, feels like itchy needles raising through skin during these times. Mostly matches the term dysesthesia.
Fatigue, even through two large cups of coffee feels like I could sleep right after
Headaches, all the time at some points in time, including the beginning at 12 years old, constant headaches for 6 months that was chalked up to being from "stress", headaches came with a left eye blurriness that came and went, then it stayed. Left eye blurry, has progressed a lot in past 7 years or so. Can't read with left eye clearly but Right eye perfectly clear.
Aching legs/knees to where I can't move from my bed
Leg/foot numbness
Left Eye burns to tears from pain in bright light, rare
Stomach/digestive issues through past few years, including extreme constipation as well as days on end of the opposite.
Loss of appetite almost entirely for months at a time, 300-800 calories per day during these stretches
Restlessness/need to move feeling, sometimes constant to where I cannot sit still or my leg tingles beyond frustration
Drooling/over production of saliva, extreme dry mouth simultaneously.
Mispronouncing words, slurred speech, forgetting mid sentence
Occasional short term memory issues, remembering what was done on a specific day or week is hard at times
Cold under skin feeling
Tested for Lyme, lupus during these symptoms multiple times in past, approximately 4 times minimum for each test since I was 12. I Am 24 now, nearly 25 years old.
Lasts 1to up to 5 or 6 months at a time typically, then am fine for months long stretches,
Mouth numbness while eating at times, facial pain in cheek/jaw region at times, not usually while eating.
Cold rush opposite, rush of warmth throughout body, constant feeling, especially there after eating.
Lower back pain. Stiff back, lower pain straight across back when bending down
Seeing stars/lightheaded/dizziness
Shaking stomach feeling/living inside feeling, crawling sensation almost, points towards dysesthesia feelings.
Left leg goes numb to a level of uncomfortability to where I have to usually get up at times and move my legs to feel normal. Lasts quite a few minutes.
Behind eyes sore when rubbing, pain in eyes.
Bone aches, specifically in shins/legs mostly
Times I'm laying in bed because my lower legs hurt so badly
Consistently feels like was hit by a truck between tiredness and sore/tenderness, usually during a time all symptoms active.
When all symptoms are not active, only a few linger. Slurred speech lingers, I have caught myself completely fumbling on speaking words with 2+ syllables, incorrectly speaking it in terms of I fail to say the whole word until my speech sort of slurs at the midpoint of a word. Another one that lingers while most symptoms shut down is the lightheadedness comes and goes, as well as the memory issues are somewhat present.
My family history, only mothers family is known, but there is extensive autoimmune disease, including my mother with SLE Lupus, Fibromyalgia in my aunt, amongst a few others I cannot name without confirming. I have considered MS as a diagnosis for over 6 years now, but when I found the term dysesthesia to finally be able to describe the way I felt through the symptoms, it pointed me right in the direction.
I have a lot of trouble acquiring any form of reception from a doctor as I am a 24 year old male, I am typically dismissed right away with any time I bring up MS to any one of them. I am unsure how to advocate for testing due to this issue. As well, if anyone has any advice on these issues, as well as if MS should be highly considered or not, it would be highly appreciated. I came here because I saw just how incredible this community is, and I hope to be able to get something done perhaps with the help of some members.
Thanks!