Hello all! I’m new here. I’m not even sure if I should be here as I have not been diagnosed but I have researched so much on my own and thought who better to get advice from than the people experiencing this…
It all started, I believe, about 8 years ago. I began having headaches, nearly constant, eye pain/dry eyes and blurry vision. Then body pain. Sometimes quite debilitating pain.
I was diagnosed with fibromyalgia but after about two years I started getting pins and needles in my hands and feet and my legs felt “heavy”.
Sometimes arms as well.
Finally got an MRI because I began I began having electric shock feeling pain when I moved my head.
But no lesions were found. Doc just said no MS. No other tests were done.
This past year has been the worst. I spent sept-dec, with extreme pain, tinnitus, balance issues(fell down the stairs twice) dizziness, numbness/tingling hands and feet, head pressure and could not move my neck for the pain it would cause. The fatigue was awful.
A lot of this is better now, months later, but I truly believe this is what the issue is as over the past 7/8 years all of these symptoms have progressively gotten worse and lasted longer than a “fibro flare”.
I know they are so similar however so I’m just lost as to what to do.
Anxious about all of that coming back as I felt very alone because no one can SEE it and the doc just goes by what she sees, which is nothing on a scan.
Hope everyone is feeling well today!
I’m happy I can type this because I’ve adjusted to not being able to feel the tips of my fingers very well 😀