This is an update thread, but I am not happy with my mood and wanted to start a different conversation with it. For those of you who don't recognize my username, I'm still fighting for a diagnosis (any REAL diagnosis) and fighting for testing. My doctors are making me fight every step of the way.
Today I had a virtual appointment with a GP to request supplemental tests in advance of my upcoming neurology appointment. I wanted the autoimmune panel. The appointment was supposed to last 20 minutes but ended up only lasting 5. I was denied every request. I had my lists with me, stated my purpose, my suspicions and reasoning, and my requests.
He immediately turned the conversation around, berated me for speaking with people who have been through the same journey and symptoms to gain from their experiences, and warned me against 'googling' for information... which I didn't do and don't. Then he started asking pointed questions about mental health and depression, like he wanted to write the entire experience off as an episode of depression. He kept repeating himself as I explained that yes, I am feeling stress because I'm not being heard. Yes, I am anxious because my symptoms keep being ignored. No, I am not depressed. As a matter of fact, I'm angry. I'm angry that you're not listening to me and I keep having to wait just to be brushed aside. Finally, he gave up on the depression and asked if I had any other questions.
I expected it, but am still in absolute disbelief. And I just don't get it. Why go into the medical field if you don't want to help others?
And I read my after visit summary, and he didn't even give the correct information in the summary, basically wrote it to make me sound like someone suffering from mental health. I just can't even today.
Sorry for the rant.
I would love your story, your emotion, your you. 💜💜