I'm sorry this is so hard
I am 48 years old. When I was 39, I started having severe spasms (I don't know what you call them but My outer upper thigh hardens and it is constant and does not unlock, even until today).
At that time, age 39 I had a T and C spine and brain MRI. Brain ok. T spine showed a lesion and C spine showed a lesions. They immediatly ordered another MRI with contrast. Turned out T spine lesion was "arctifact" (I still don't know what is this) but C spine lesions were real . I had the most severe panic attack in that Machine that triggered chronic panic attacks until today. So, they went on to a Lumber puncture, which age 39 showed nothing but fine. So I felt in the clear of MS.
Fast forward till now. I'm 48, my outer thigh still has the hardening that caused falls, Now my upper arms have hardening too (The outer part of my arm tricepts) my shoulders. I spend every night when a massager on my legs and arms for hours to unharden these areas, then a hot bath. I use a walker because my balance is off.
I did a nerve conduction study last week. He oddly did not test my feet. Only my calves and lower back. It showed a pinched nerve possible at S1.
Now they really, really want new MRIs. I cannot, will not , can not fathom going in that machine. Absolutely not. There are no open MRIs where I am and they won't put me under anestisia. I also cannot endure another lumber as I needed a blood patch and it was traumatic, I still have back pain until today from 2013.
So, can a MS dr diagnos MS without new MRIs or lumber punctures? My doctor already gives me baclofen and gabapentin so its like I am already being treated. But, they really want me to go to the MS dr.
Does anyone think this could be MS? My lumber was fine in 2013.
Thank you!!!! I'm in Hawaii btw