I just had my first Ocrevus infusion this week. The first half of the first dose. I was quite tired coming out of it but was able to SAFELY drive home. My head was clear but my body was tired. Watching them pump that juice into my arm was a real hard thing for me, emotionally. I want it, but am angry or sad or scared (or all of the above) about the fact that I need it. Maybe it is making this all so real for me. I had my first "diagnosis" by a receptionist about 2 years ago. She told me (not my Dr.) I had MS even though I didn't have any clue why I had the extensive MRIs the week before. Since then I have been trying to understand myself and what this can mean for me. My formal diagnosis came last month from my neurologist.
Had some low-grade headaches since but they respond to otc migraine pills. My energy seems lower but similar to last week. Had some intense night sweats the first night but it has been minimal since then. I sleep in a rather cool room. Otherwise there is not much difference that I can feel. I am cautiously trying to resume my "exercise" as best as I can but I don't want to overdo it. In my heart, I am glad there is something that can be done for this - hopefully.
What else is in store for me? This is all still so new for me.