No diagnosis but symptoms

Hi all

I wrote on the forum last year during a scary time where I had intense symptoms: tingling, electric pulsing feelings, electric shock feeling in my tongue, burning sensation, tickly/crawling sensation, vertigo, tinnitus, numbness, spasms/jerks, fatigue, brain fog/cognitive issues, slurred speech, aches and pains etc.

My Dr was supportive and arranged referral but couldn't see her til October (I saw Dr in July) so saw another specialist to get an MRI done. It was clear he wasn't taking me seriously because I take medication for anxiety. I also do what my Dr said in the letter. His conclusion was it couldnt be MS and was likely related to anxiety. He of course spoke to neurologist before I saw her and I think that influenced her approach. Also, the MRI was clear. Neuro said her basic tests were fine and it may be seizure activity (I have epilepsy). Had an EEG which was fine.

I told my Dr I didn't felt heard so she contacted public system. I got a letter back with a response that was quite terse and essentially said it is most likely due to sleep issues and anxiety.

What really gets to me about this is that it really does feel that they haven't taken me seriously as though it is in my head, because surely even if they didn't think it was Ms they would look into what else it could be?

Back to the present day. I have spoken to my Dr again. I can tell she is frustrated with me that I still want to continue investigating. She said the result will most likely be the same.

I am well aware that I probably sound like a hypochondriac, but I have also rationalized most of the symptoms as well. I will even admit that possibly they are psychological. However, I look back and I remember what it was like last year. It was scary. The symptoms calmed down after a couple of months or so. They have been more noticeable in recent months again. My Dr has referred me for a second opinion, but I do feel she is reluctant.

My hands and feet and right leg I particular have a tingly feeling. Muscles in my right leg always feel tight. I also have other things like sensitivity to sound which has been an issue for years. I am also referred to a oral surgeon to explore jaw pain which Dr thinks could be TMJ. I jaw clench a lot but the jaw pain has been largely on right side.

The reluctance look into other things is what really gets me. The cog fog and memory issues, and the struggle to think and plan has been a real issue. I'm a teacher and I have been out on an advice and guidance programme which could ultimately lead to losing my job if I am not able to improve.

Recently I tried some of the basic Neuro tests...The one where you out one foot in front of the other walking in a line is very bad. I am unstable and jerky and sometimes lose balance. If I try with eyes closed I fall over straight away.

I will see a new neurologist at the end of the year in November or December. The one I have chosen is an Ms specialist who has done research in MS. I just hope she will take me seriously!

Have others had similar struggles? Anyone who had clear MRI but was later diagnosed?