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Meds

PaulinaFlynn

I was diagnosed in 2019 and since then I have had no meds prescribed for my MS. My neurologist doesn't even seem to listen to me when I see her which has been 1 time since being diagnosed. Should I get another Dr or stick with this one.

Cnthneal6 Member
Yikes!! Have you tried getting an appointment scheduled. Depending on type of MS you were diagnosed with for most part determines how you are seen. I have PPMS and we’ll controlled right now and I see Neurologist twice per year after each infusion unless something comes up with me I was diagnosed with Covid-19 in December and he would call and check on me and primary care would also call. Please let them know how concerned you are. If they do not respond or schedule an appointment you may have to seek out another Neurologist.
PaulinaFlynn Member
I was diagnosed in Rochester at Mayo Clinic and I think I will probably have to go there to get care and I don't know what kind of MS I have. They just did a bunch of tests after I got diagnosed with optic neuritis. Ruled out everything else and said that I have MS and RA. On meds for RA.
1. Erin Rush Community Admin
  , the Mayo Clinic is definitely a first class facility and if that's where you end up, I think you're in safe hands. That said, I know if you have to travel long distances to get there, that's not so fun. And one of our contributors also deals with MS and RA -- https://multiplesclerosis.net/community/experts/lisa-emrich. You can read many of her articles here or on our sister site dedicated to RA -- https://rheumatoidarthritis.net/. I hope Mayo is a good fit for you and you can get on a treatment plan that works well for you!
  
  Best, Erin, MultipleSclerosis.net Team Member.
PaulinaFlynn Member
MRI has shown lesions in my brain since 2016 but they're stable or so I'm told.
1. Lori Foster Member
  Hi . How about writing down all of your questions and making another appointment with your neurologist? The neurologist might have good reasons for keeping you off medications right now, but you need to know and understand that. You also need to understand your type of MS so you can better advocate for yourself. If you still feel your doctor isn't listen or if your doctor isn't answering your questions, i would move on to someone new. Your doctor should be a true partner in your care. Wishing you the very best. - Lori (Team Member)
Devin Garlit Moderator
yes, please seek another opinion! Hopefully someone who has a lot of experience with MS.