It's 2025!
Ok folks, it's 2025, no more stalls, delays, detours, this year someone needs to decisively DO SOMETHING about MS. If you suspect it has to do with EBV, declare war on EBV, if you have a theory about 'Gut Bacteria', nuke em! If you think antiretroviral makes a difference give us the antiretroviral. Haha, my best wishes and hopes for all of you in this new year of recovering what we lost last year and ending stronger than we started. My plans for this year are winning my SSDI and several 'side projects' I can't elaborate without sounding like I am trying to sell them to you.
Anthonyp, I remember applying for SSDI in 1992, when I had the superstorm of an exacerbation that took my left leg out of commission for about three years and still hurts more than thirty years later. I filled out the forms in floods of tears, feeling like a complete lemon, and I got SSDI on my first application, but I used the most technical language I could, copied directly from my dour neurologist's case notes. I have often heard that SSDI is impressed by applications that use the most specific language and includes doctors' evaluations. Best of luck to you and let us know how it goes. I imagine the climate has changed considerably in the last thirty years!
In solidarity, Therry, a Team MemberCaptains Log, Stardate 0122025, we are approaching February and still no significant Progress on MS, the silence is deafening but we soldier on.
if only we had someone with your level of passion leading the charge on curing MS! I feel like you would have us all feeling better in days. 😀 In the meantime, it certainly feels good to have someone voice the need for action behind it.
Best
Alene (team member)
Thanks Alene, just my way of venting my frustration while under a barrage of unsolicited advice.
your frustration comes through loud and clear in a very kind and gentle way. It comes as small solace to know that people in labs around the world are working as hard as possible to unlock the cure(s) to MS. Yes, there is likely more than one in my opinion. I have the opportunity to interact with many of these researchers and their desire for a cure matches yours and mine.
SSDI is a bear to navigate on our own but worth the effort if you can complete it successfully, Don't hesitate to enlist and SSDI attorney if your initial application is denied. The fee they collect when successful would be worth it in your time and possiblity of being denied a second or third time.
responding from somewhere in time in the Starfleet, Laura, MS.net moderator, DX '08
