kayleighhill
How are your mind and body feeling this week?
What symptoms seem to be bothering you the most lately? Do any symptoms seem to have subsided this week?
Emotionally, where are you this week?
Have you had any specific ups or downs with the week?
Let us know how you're feeling.
sammi Member
I am new to this website. I don't normally talk about it my MS on line. Other then to a private journal. Talking about my symptoms can be very long winded and complicated for me. Because there are so many of them and they've been going on for years and years.
Every single day I have to deal with exhaustion. Every single day I have to deal with dizziness. Every single day I have to deal with pain and spasm. Every single day I have to deal with cognitive issues. Every single day I have to deal with verbal and speaking issues. I live with fatigue and I live with weakness weakness at levels. I can't even explain 2 other people. And moving and walking has just become a whole new art form for me. I really have to say in the way of symptoms I never have an easy day. And I actually am pretty well adjusted to it. It just is what it is and I know. I have to live with it so i've learned how to live with it.
When it comes to my emotions. When it comes to my frame of mind. When it comes to my anxieties or my fears. Those things change like by the minute. Some days they're great big ugly crazy things. And some days they just quietly sit in the background and don't really require too much attention.
I am a recluse. I never leave my house. I have no family anywhere near me, That I can reach out to. So for me emotionally. My biggest challenge is the fact that i'm so alone and so lonely and so isolated. I totally feel the effects of these things and I try to cope with them as best I can, along with everything else.
So I am kind of glad that I found a place that I can come and I can express myself. And talk about things and respond to things. At least my brain is telling me that for the time being, that it's okay to talk.
CommunityMember713c86 Member
jackiej Member
cdw56 Member
Sammi, your story is the same as mine. But I do have family that I asked them when their lease was up if they would move back home. On the whole I'm glad they are here. I always LOVED living alone. But I now know it just was not in the cards any longer. I miss my independence. Along with my ability to walk, multi task..... well pretty much so much as you said. We will just keep on trudging along! Have a blessed day!
sammi Member
caninemom6142 Member
Sammi, it's okay to be longwinded, I'm pretty longwinded myself. Talking about something to somebody who goes through the same crap sometimes can help you to feel a little better, more understood. I've had MS for 42 years. Some days I feel somewhat okay, other days I'm so tired and dragged out, I feel like I've been trampled by a herd of buffalo. I've got no one to help me so no matter how bad I feel I push myself to get up and do what I have to do. Nearly 40 years ago my wonderful, kind and compassionate neurologist told me, "Keep doing what you're doing, keep moving, or you won't be able to." I have followed his advice. When he said that, he knew that I was/am somebody who did a lot of physical exercise and at my age now, I realize how important physical exercise is and how it DOES help us to stay on our feet and help us to get through each day. Sometimes exercise is tough on a day when there's a lot of pain and many days, exercise is boring but, IT'S IMPORTANT. There are a great many people who have MS, we all have our individual problems but we all know, or should know, what others with this disease go through and we do understand.
sammi Member
kellbell Member
kjkamom Member
The temperature in Florida is so oppressive. Even with my cooling vest, fans, air conditioning etc., I am so fatigued. The stress of trying to schedule my day in order to sit, cool off and rest, after 15-20 minutes of housework, makes me almost feel like not even trying.
I often grieve the loss of the old me that kept a meticulous home.
Doreen H Community Admin
Thank you for sharing your experience and kind words of encouragement.
How are things going today? ~Doreen (Team Member)
sammi Member