caret icon Back to all discussions

Health and trying to stay grounded.

One thing that I don’t like about having this horrible disease is that it’s ups and downs that I have to go through with one day I’m good, and then the next I don’t really know. And after having this for so many years I’m used to having it, and I really hope to hear about a cure, then I would be one of the first in line.

  1. Help Help.

    1. thank you for sharing these thoughts. They are ones that I know so many of us can relate to in this community. MS is incredibly unpredictable and that can make life - especially any time of planning in life challenging.

      I've included a couple of articles below that speak to this experience that you might find helpful and really relatable.


      I think having this community of people who get it and understand firsthand the realities of the day-to-day experience of this diagnosis is really helpful. It's comforting to be reminded that we are not in this alone.


      https://multiplesclerosis.net/living-with-ms/unpredictable-unreliable



      https://multiplesclerosis.net/living-with-ms/explaining-unpredictable-fatigue


      Best
      Alene, moderator

      Please read our rules before posting.