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Gold Nanocrystal Remyelination Phase 2 Clinical Trial Update – End of Treatment Finally Concluded

Hello. Below is an update on progress since my last posting on May 30.

https://multiplesclerosis.net/forums/gold-nanocrystal-remyelination-phase-2-clinical-trial-update-end-of-treatment

I was fortunate to be able to continue the trial drug for another month due to a repair delay on the UTSW 7T MRI machine which is used throughout the treatment to evaluate the effects of the gold nanocrystals on brain lesions. I was in the trial for a total of four months with the final daily dose taken one week ago.

I had thought that once I was done with the trial that I would start to feel my MS symptoms again and was disappointed that I couldn’t continue with the treatment. So far over the past week, I have continued to experience the benefits of the therapy. I spent this afternoon at dive meet for my son and was in 85+ degree heat with high humidity for 3 hours and did not experience any double vision, foot drop, excessive numbness, or fatigue issues. I also recently developed a chest cold (not COVID!) and a minor cough - which has NOT exacerbated any MS symptoms. I view this as a miracle.

I have two more follow-up visits at the UTSW over the next 8 weeks and hope that I can find a way to acquire more of the drug and continue my progress towards a symptom-free MS experience. There continues to be no side effects from taking the drug. I still have numbness in my right-hand fingers and my gait and balance is a little off, but nowhere near as bad as before I started the trial. I still have double vision when I look to the left 30-40 degrees. My energy/cognitive levels still remain high throughout the day.

The drug is made by Clene Nanomedicine. Info on trial study and contact details are here: https://clinicaltrials.gov/ct2/show/NCT03993171

  1. Thanks for the update, ! I have really enjoyed being able to follow along your progress due to your posts. I sincerely hope you continue to see benefits from this treatment and I hope you find a way to continue getting it.


    Thank you for your efforts to share your journey with us and thank you for your willingness to take part in the clinical trial!


    Best, Erin, MultipleSclerosis.net Team Member.

    1. Thanks so much for coming back and sharing this with us, . I hope the positive effects continue for a long time and that this trial leads to FDA approval. It would be awesome if they let you continue. Fingers crossed! I look forward to your next post and I hope it's more good news. Sending lots and lots and lots of positivity your way. - Lori (Team Member)

      1. Appreciate the update cheers.

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